Feminist Ethics in
the Health Care of Women
Pat Anderson
DePaul University, School For New Learning
Major Piece of Work, Winter, 1993
Academic Mentor: Catherine Marienau
Professional Advisor: Ann Stanford
Introduction
Historically, the field of philosophy has been
dominated by white males. If asked to name philosophers, the average person
would probably name Aristotle, Plato or St. Thomas Aquinas. It’s doubtful many
people would be able to name one female ethical theorist. The field of
bio-medical ethics has experienced a similar history because most doctors have
also been white males. As a result of this male dominance, theories about
ethics and the practice of medicine have come from male perspectives; women’s
perspectives, values, and life experiences have been left out.
Having spent twenty-six years in the medical
profession in a traditional female role, that of a nurse’s aide, practical
nurse and registered nurse, I know from first hand experience the negative
effect that patriarchy has on patients. My biases and assumptions come from
viewing patients contextually and emotionally, always keeping in mind the
relationality that forms the core of their lives. I view patients from a mode
of caring; doctors view patients in abstraction; they tend to use rationality
in forming their professional ethics. My bias is that the patriarchal nature of
medicine seeks to control women; I assume that this hurts women. I hope to
learn if feminist ethicists share my assumptions and biases. Do they share my
opinion that the vulnerability of patients (especially women) puts them in
perfect position for the hierarchical medical institution to control them?
I will address the basic philosophical
differences between feminist and traditional ethicists. I will then go on to
discuss more specifically, the area of feminist ethics in the health care of
women today. Some of the areas include, abortion, reproductive technology,
pregnancy, menstruation, cosmetic surgery, research, cancer, and health care
workers other than doctors.
I will use sources and personal experience to
make the argument that the health care institution itself and the very field of
medical ethics serves to maintain women’s oppression and devalued state in society.
I plan to show that technology is being used to camouflage the fact that men
are still using their power to control women’s bodies – things haven’t changed
within patriarchy just because the science has become more sophisticated. The
very mechanisms of oppression prevent women from seeing what is happening to
them. Patriarchy is like a massive religious cult trapping all women whether
they have had their consciousness raised or not.
I hope to illustrate that the manner in which
women are oppressed by medicine is frighteningly not far removed from terrorism
or brain washing. Yes, this is extreme – I mean it to be!
I hope to illustrate through an extensive
review of the literature, and through my own practical experience that women’s
oppression has been and still is being perpetuated by a bio-medical ethics that
devalues women.
I hope to learn what women have to say about
the field of medical ethics.
-Do
other feminists who have experienced health care differently than I perceive
the system as I do?
-Do
women offer viable solutions to today’s ethical dilemmas in the field of
bioethics?
-Could
a combined perspective that would include feminist and “old school”
ethical ideas be of use in a field like reproductive technology?
-Could
a combination of solutions actually approach justice?
-What
do male ethicists have to say about feminist ethics?
-Would
adding the feminist viewpoint change the relationship of the people involved in
the biomedical environment? (doctors, nurses, patients, technicians and social
workers).
-Does
the oppression of women affect feminist ethics? Are there male ethicists who
are aware of and admit the oppression of women?
-And
what role do they see feminist ethics playing in bioethics today and in the
future?
-I
will offer solutions posed by feminist ethicists and some of my own.
Feminist Ethics in the Health Care of Women
Sexist Ethics
The very same hierarchical structures found in
larger society organize the bioethics in health care. The primary concerns of
medical ethics are issues that confront physicians. Doctors are in power so
it’s their views that are usually adopted. Problems faced by nurses and other
health care workers are frequently not dealt with at all. This suggests whose
work is seen as important and worth studying. The complexities and tensions
that exist among the care givers themselves are seen as irrelevant, thus
ignoring the fact that their problems have an enormous effect on the quality of
care given to patients (Sherwin 3).
Sexism and gender oppression can be so subtle
and pervasive that without feminist inquiry they would be overlooked. Bioethics
literature has not addressed the oppression of women, making that reason enough
to peak feminist suspicions. Feminism should ask that bioethics include in its
inquiries questions about whether their decisions affect women’s oppression in
society (Sherwin 4). The medical field has been given the power of legitimacy
because of it’s scientific knowledge and the power that it has over our health.
The institution of medicine has been designed to reinforce sexism; sexism hurts
women. We need to identify the connections between the practice of medicine and
patriarchy.
“People’s lives can be poisoned by
oppression as well as by toxins, and both elements merit consideration in moral
evaluations of health care practices” (Sherwin 7).
“One of the central insights of feminist
work is that the greatest danger of oppression lies where bias is so pervasive
as to be invisible” (Sherwin 10).
Sherwin asserts that we need to questions
assumptions we have held about health care (Sherwin 10).
Mendelsohn goes as far as saying that the
religion of modern medicine is surrounded by a mystique that intimidates
patients into accepting whatever the doctor says (Mendelsohn 4). He says that
mortality rates show that when compared with a century ago, (excluding those
saved by sanitation, nutrition and a few breakthroughs in epidemiology)
Americans are not as healthy as 100 years ago, despite the wonders of
technology and the religion of medicine (Mendelsohn 6).
Mendelsohn agrees with feminists that women
certainly face sexist attitudes that can hurt them throughout society but,
“the
chauvinism of a physician or a surgeon, however, may condemn the same woman to
a lifetime of dependence on drugs or cost her the life or health of her baby,
to say nothing of the loss of her breasts, her uterus, her ovaries, and even
her life” (Mendelsohn 28).
As far back as Hippocrates’s time, during the
5th and 4th centuries b.c., doctors thought a female’s reproductive system was
the cause of women’s insanity and hysteria. As a result, for over two thousand
years, women who were considered deviant, (who did not exhibit passivity and
humility) were cured by hysterectomy. Ovariectomies discovered in 1809, were
also used to cure insanity, psychological disorders and to keep women under the
social control of men; female castration was thought to assure obedience from
women. The medical profession used these justifications to remove ovaries until
1946 (Mendelsohn 30)!
G. J. Barker Benfield claimed, in his medical
history book, The Horrors of the Half-Known Life, that the gynecological
specialty was brought about to support retaliation against and for the control
of women; doctors resented women’s entering the work force in the Industrial
Revolution and the women’s movement associated with it. Doctors exploited their
power as physicians and attempted to showed women who was boss by performing
aggressive surgeries (such as ovariectomies and clitorectomies) (Mendelsohn
33).
There are several main issues ethicists must
address that are faced by women in the health care system; the unequal
treatment of women, the roles of doctors and nurses and issues that relate to
power struggles in relationships. Today’s medical ethics addresses emergency
type issues and avoids everyday maintenance issues (Warren 32).
One issue, involves how ethical debates
themselves take place and how ulterior motives effect what is believed and what
is included in the arguments. Louder than the messages spoken with our lips may
be what we select and what we neglect to chose to study – the games we play
also sends a strong message (Warren 32).
Warren postulate that a sexist ethics would
frame moral questions from a male perspective and use these male perspectives
to formulate solutions. The moral dilemmas chosen would involve authority,
status and power. For instance, who has the right to make a final decision
about your health care, you or your physician? The solutions posed would ignore
matters of vital importance to women and children. Warren uses an excellent
example in that to save costs, patients are sent home sooner than before. When
they get home a female family member will likely be involved in caring for the
person; their unpaid labor is without social weight and is not valued (Warren
33).
Second a sexist ethics, would be hidden in a
way to make it appear to be neutral. Ideal moral agents have been those who
could use rationality or calculate the utility of a solution. In using these
types of ethics people whose life experiences do not fit mainstream ideologies,
like women, gays, lesbians or blacks are ignored. If we do not address their
unique life experiences they will be made invisible even to themselves. By
using universal perspectives, we are saying that all human beings are the same
or generic. The fact that women’s bodies, emotions, and relationship are
different than men are thus made irrelevant (Warren 33).
Third Warren says that a sexist ethics would
frame debates in a manner that keeps women on the defensive; it would invite
women into the framework, promising to address their problems – provided they
don’t rock the patriarchal boat too much. Women are also on the defensive
because one of the most popular debates lately has been abortion where women
are pitted against a defenseless fetus (Warren 33-34).
Warren suggests we look at inequalities, sexist
occupational roles, personal issues, and relationship issues. She suggests we
look at the inequalities toward women in health care and then seek solutions.
She uses IVF (in vitro fertilization) as an example: the technology excludes
women who are single or lesbians – you must seek to raise a child with a man to
be considered for the technology (Warren 35-36).
Nurses have historically been delegated the
passive female role; in these passive roles how do nurses resolve their ethical
issues when the issues of the powerful doctors are the ones that are valued and
taken up for ethical discussion? The training that doctors get is technical,
not ethical and yet they have been given the authority in this field. Nurses
are supposed to nurture, and rather than make decisions, they are supposed to
follow doctor’s orders. These roles definitely follow gender edicts (Warren
36).
Medical ethics has not addressed stresses faced
on the jobs of health care workers, despite higher than usual rates of alcohol
and drug abuse among health care professionals. Divorce and suicide rates are
also high. In addition to the personal being political, the personal is
professional – what may be seen as personal may have a profound effect what
happens on and off the job – for this reason it should be addressed by medical
ethics (Warren 36-37).
Oppression
“Marilyn Frye has defined oppression as an
interlocking series of restrictions and barriers that reduce the options
available to people on the basis of their membership in a group” (Sherwin
13).
These restrictions are insidious. The practices
that make up the system of barriers appear harmless when looked at separately,
but when looked at within a set of institutionalized norms, the patterns become
clear. The ideologies that oppress are virulent because they are internalized
by the oppressor AND the oppressed (Sherwin 14).
Men
Unless men (and women) engage in demolishing
patriarchal structures, they are complicit in maintaining them. Sexism gives
men a choice of exercising their power. Those interested in real gender
equality must do more than not using their choice – they should take active steps
to get rid of the unjust power men hold merely by being male (Sherwin 25).
Jonathan Mann, of The Global AIDS Policy
Coalition, served as a model of how men can help to stop the oppression of
women. He appeared on “Good Morning America”, to discuss solutions to
the problem of AIDS in Ugandan women. He sees the empowerment of women as a
solution to the spread of AIDS among the women of Uganda. Mann says that if
women were allowed to, get divorced, own
property, have rights, demand the use of protection from disease, refuse sex,
or have a say in their lives, they might stand a chance to prevent themselves
from contracting AIDS. He says that medical means are not the only ways to stop
the spread of disease. Mann further stated that at the start of the AIDS
crisis, 25% of the patients with AIDS were female, and now it is up to 40%
(Mann 92).
“Although medical and surgical overkill
are routinely inflicted on all Americans, its primary victims are
women” (Mendelsohn x). Mendelsohn
wrote his book Male Practice to help women avoid the disastrous fate he
knows many women have faced in the medical profession. He claims he
purposefully used the male pronoun in the title because most doctors in the
U.S. are men (Mendelsohn x). Mendelsohn is one of the few men who speak out
clearly in support of women’s rights; he serves as an example as to how men can
help overcome women’s oppression.
Philosophical Ethics
The study of philosophical ethics is concerned
with value questions about human conduct; it studies the legitimacy of using
categories like: good, bad, ought, should, right, wrong, obligation,
responsibility, justice, injustice, praise or blame. Philosophical ethics seeks
to specify appropriate grounds of justification for moral judgments. Most
philosophers don’t prescribe commandments or suggest punishments from some high
authority the way that churches do. Ethicists seek to make sense of underlying
cultural values and types of considerations that determine the moral assessment
of practices. Feminist ethics, however, considers oppression of women along
with moral judgments (Sherwin 36).
Traditional Ethics
To distinguish traditional mainstream
(malestream) ethics from feminist ethics we must compare and contrast their
concepts (Sherwin 37).
Arthur Zucker lists in his preface the topics
NOT included in his anthology, some of them are: nursing ethics, alternative
concepts of medicine, and minorities in medicine. In the first paragraph he
states that it’s not that he finds these topics unimportant, but he thinks that
if a student comprehends the material he includes in his book, that the student
will be able to think through other issues for her or himself with ease (Zucker
ix). Yet if not introduced to taking oppression into account how can he know
that students will be able to? The historical fact that women’s oppression has
NOT been considered in traditional ethics illustrates the importance of his
pointing it out. He acts as if he, as a teacher, has no power of influence over
what his students think is important.
If Zucker gave a priority to the issues of the
oppressed, he could give future students of ethics a sensitivity to oppression
rather than not exposing students to oppression by excluding it from his
anthology – NOT including oppression and other issues relating to women and
minorities is a loud message about their value.
Zucker claims that the role of ethical theory
is to identify relevant moral factors. By helping us to focus on specific
aspects of a problem, theory gives us direction to sort things out (Zucker 10).
By choosing not to include nursing, minorities and alternative health care
options Zucker favors a discussion that would serve the status quo. If one does
not factor in oppression as a relevant factor, how can moral agents say that
they have looked all the moral
factors? Correcting the immoralities of women’s
oppression is a morally relevant factor.
Zucker claims that theory provides us with a
common vocabulary to the discuss the issues (Zucker 11). To a feminist, ethical
discourse whose vocabulary is devoid of the word oppression is lacking a
fundamental relevant factor.
Zucker further states that the fact that
theories are limited, allows for alternative interpretations, due to their
complexities, theories impose artificial simplicity (Zucker 11). Feminists
certainly see alternative interpretations in that they perceive that the
traditional male devised theories serve to maintain a stratified social
structure that keeps men at the top.
Deontologicalists
These theorists are involved in deciding which
actions are required or prohibited as a matter of moral duty. Actions are
deemed right or wrong because they are either required by moral laws or rules
and are considered to be binding, independent of a person’s specific interests.
The most influential deontologist was Immanuel Kant (1724-1804) whose theories,
despite the fact that they were published over 200 years ago, are still used by
some philosophers in 1992 (Sherwin 37).
Kant proposes we decide on the rightness of an
action according to a logical principle. Moral duties are identified by
rational, free persons using abstract reason; these duties must be above any
personal considerations. This does NOT allow for specific facts in a situation.
To Kant, the moral thing to do is to follow moral laws, not to try to attain
the results we want. His theories require that we follow some actions despite the consequences (Sherwin 37).
Kant was critical of teleological theories
(actions measured by their consequences) because one could not be sure of what
the consequences of an act would be, so it left the morality questionable –
they lacked universality. He thought that an ethical theory must tell us with
certainty whether an action is right or wrong for all people in a given
circumstance, even before they acted. Rightness or wrongness of an act depends
on the motivation. For Kant it’s the quality of the will, not the quality of
pleasure as a result of an act. Correct motivation depends upon reason (Zucker
4). Kant’s “categorical imperative” states,
“Act only according to that maxim whereby
you can at the same time will that it should become a universal
law”(Zucker 5).
The idea of having to pass a “categorical
imperative” test and having to think ahead so that you end up with a rule
that applies to similar situations is ridiculous to me. Who decides what maxims
are generalizable? An example of this type of maxim might be, all patients with
cancer will receive chemotherapy, after all, the intention is good.
These theories don’t fit women’s life
experiences that are contextual in nature, which is opposite from the rational
perspective that influenced the development of the categorical imperative.
Kant assumed only men could be moral agents;
they were able to ignore personal sentiments in making decisions. Feminists
reject the very notion of a moral theory totally separated from sentiment
(Sherwin 39).
Teleological Consequentialism
The moral worth of an action is measured in
terms of the worth of the consequences (Sherwin 39). (Which is quite different
from deontologists who evaluate the correctness of an act by laws and rules
they think must be followed, despite ignoring the contexts of specific
situations).
These theorists say that the evaluation and
decision regarding an actions rightness are based on whether the action
maximizes the outcome when compared to alternatives (Sherwin 39). Using the
example of all cancer patients receiving chemotherapy, we would be required to
evaluate the consequences; consequences could be nausea, diarrhea, weight loss,
extreme discomfort, depletion of infection fighting cellular function, multiple
infections, longer life, cure, or death itself from the side effects. Who
decides what is the prominent criteria to be used to evaluate these consequences?
Utilitarianism
In this theoretical framework, the consequences
of ethical decisions are evaluated by accumulated effects on the welfare of
persons. These theorists recommend not following rules if the outcomes are less
than desirable, even if they appear rational in the abstract. Their analysis
focuses on concrete or abstract experiences and denies that the feelings and
attitudes of agents and those affected by the action should be considered. On
an abstract plane rightness is calculated by the total amount of happiness and
suffering created by an act without regard to whose happiness or suffering is
involved; this theory is not concerned with merit or fairness. So, if a mother
had to decide whether to help her children (2 of them) or her enemies (15 of
them), she would simply have to go by the numbers to know which group will
allow her to please the most people. This theory does not concern itself with
WHO will be pleased, so a mother might be obligated to go against her family by
following this theory. These theories demand impartiality of agents which many
find repulsive (Sherwin 40).
The founder of utilitarianism, Jeremy Bentham
(1748-1832), thought that we humans were subject to 2 masters: pain and
pleasure; these powerful incentives control what we do. He coined the phrase,
“principle of utility”, and wrote,
“By
the principle of utility, is meant that principle which approves or disapproves
of every action whatsoever, according to the tendency which it appears to have
to augment or diminish the happiness of the party whose interest is in
question” (Zucker 3).
He even developed a hedonistic calculus for
moral agents to use to calculate the potential amount of pleasure and pain a
specific action might take. Bentham’s theories did not address what to do if
two actions yielded the same amounts of pleasure (Zucker 3).
(As a feminist, I know who would decide in a
sexist, racist and classist society whose pleasure was of more value – rich,
white men!)
John Stuart Mill (1806-1873), claimed that a
utilitarian needn’t use calculus to come to moral decisions. He thought that
one could evaluate acts in advance and come up with guidelines and/or rules to
speed things up. Mill thought that pleasure of the mind was of more value than
the physical. If 2 acts yielded the same pleasure then “competent
judges” were called who had experience with many pleasures to decide on
the close calls (Zucker 3).
I can imagine that with this type of thinking
the intellectuals could rationalize oppression quite well. If pleasures of the
mind hold more value then they as intellectuals would be favored over the needs
of the poor, women (who were certainly not seen as intellectuals in those
days), blacks and Native Americans and others. They were free to sit in their
ivory towers deciding on their own pleasures and ignore the oppressed people’s
mere physical needs.
Both of the above theories require distancing one’s
self from personal experiences. Kant is into universal laws, and consequentialists
tell agents to weigh their own interests equal to everyone else, without moral
evaluation of the interests themselves. Both theories deny weight to details of
positions in dominance hierarchies. This type of abstract neutrality is
objectionable to feminists, who look at the socio-political contexts of people
in moral deliberations (Sherwin 41).
W. D. Ross (1877-1971) attempted to combine
Kantianism and utilitarianism. He identified “prima facia” duties and
“actual duties”; prima facia duties are the ones that we see at first
glance, ones that our reason sees as moral commands, that are self evident and
obvious to rational persons. Our actual duties are not self evident, nor can
they be logically obtained from prima facia duties; people with keen minds and
moral sensibilities can differ on actual duties even if they agree on prima
facia duties. Ross’s theories are weak in that he doesn’t tell us how to decide
among the prima facia duties (Zucker 6,7,8).
Ross says to measure the rational intuition of
the “plain man”. He fails to take conflicting issues into account.
Whose rational intuition is followed between the oppressor and the oppressed?
These theories do not leave room to consider feminist concerns (Sherwin 38).
Ross does not identify WHO is the “plain man”.
Bernard Gert, a contemporary American
philosopher, has also combined Kantianism and Utilitarianism. He sees morality
as a public system applying to all rational people – the goal is to minimize
evil. Gert claims that all rational persons would agree that certain things are
evil: death, pain, disability, loss of pleasure, opportunity or freedom. He
postulates 10 moral rules as the core of human moral experience that should
never, without adequate reason, be violated:
“Do not kill. Do not cause pain. Do not
disable. Do not deprive of freedom or opportunity. Do not deprive of pleasure.
Do not deceive. Keep your promises. Do not cheat. Obey the law. Do your duty
(in your job or your profession)” (Zucker 14).
Gert then goes on to identify questions to ask
about the specific problem being addressed; the key terms in his analysis
involve rationality, impartiality and irrationality. Zucker says that Gert’s
moral theory addresses the type of problems encountered by health care
professional and, “yields fresh insight about the moral experience of
humankind” (Zucker 15).
Gert’s fundamental concept is rationality; in
order to justify morality, the act must at the very least be rational because
everything else depends upon rationality. Impartiality, he claims, is universally
recognized as an essential part of morality. The rules of the game are known by
all and all involved are required to act rationally. He discusses rationality
as thus:
“A person with sufficient knowledge and
intelligence to be a moral agent acts irrationally when he acts in a way that
he knows, (justifiably believes) or should know, will significantly increase
the probability that he will suffer death, pain, disability, loss of freedom or
loss of pleasure, and he does not have an adequate reason for so acting. A
reason is a conscious belief that one’s action will help anyone, not only
oneself, avoid one of these evils, or gain some good, viz., ability, freedom,
or pleasure, and this belief is not obviously inconsistent with what one
knows” (Zucker 17).
As far as public rules, the following describes
Gert’s description of a justified moral system:
“Everyone is always to obey the rule
unless an impartial rational person can advocate that violating it be publicly
allowed. Anyone who violates the rule when an impartial rational person cannot
advocate that such a violation be publicly allowed may be punished”
(Zucker 19).
Who are these impartial rational persons? Who
decides who gets to make these decisions due to their status as being impartial
and rational? Gert admits that impartial rational persons may disagree on the
ranking of evils due to ideological differences, but does not offer solutions
to these differences. Gert assumes that we have an egalitarian system. If Gert
had come up with his moral system with the hierarchical nature of our world in
mind his system would have to be vastly different. Under hierarchy in the
medical field the doctors would be considered the impartial rational persons
who are qualified to make judgments on how much suffering is morally allowable.
In society at large, under hierarchy, those in power positions would be the
ones making decisions about what’s evil and what is right. His ethics is
dehumanizing to those without power who would be labeled partial and
irrational; they would be viewed as needing those in power to “take care
of” them.
Contractarianism/Social Contract Theory
Social contract theory is similar to the above
three, but places objects in a social context. It makes the assumption that
people are independent, self interested and view morality as though it were on
a par with like trying to get cooperation among competitors. This theory
appeals to a “social contract” or hypothetical agreement, the logical
outcome of a reasonable negotiation with separate self-interested persons.
These selves share a mutual gain – avoiding violence. Morality is a rational
option to limit the dangers of life (Sherwin 41).
Only abstract features of significance to
everyone have meaning in developing the contract. (no emotionality or
contextual data). It does not address the morality of persons who do not meet
ideal moral standards. Nor do they (the proponents of the specific theory)
check out the moral relationship existing among people of unequal status.
Details like whether or not someone is disabled, has talent or social status
compromises the legitimacy of the contract (Sherwin 41).
Feminists say that these contracts developed
under a “veil of ignorance” perpetrate oppressive practices. The
theorists act as if traits like race and sex can be treated the same as eye
color; they fail to identify mechanisms that maintain oppression (Sherwin 42).
Feminine Ethics
Sherwin discusses 2 distinct groups of concerns
about traditional ethics:
1. “Feminine” ethics – how
traditional approaches fail to address the moral experiences and intuitions of
women (Sherwin 42).
Anti-women bias is seen in much of the
traditional theoretical ethics work. As the leading moral theorists show,
existing ethics proposals don’t get at their objective – impartial theories and
most theories show gender bias and misogynist values; it is not insignificant
that most moral theorists have historically been male (Sherwin 43).
Aristotle’s theory of virtues is illustrative:
men’s virtues were those needed for freedom and political life; women were
those about obedience and silence. Only male virtues were the subject of
philosophical interest or given value. Aristotle’s sphere of influence, which
included most of our church fathers, lasted for centuries; his followers not
only accepted his ideas about gender specific moral worth, but made them the
centerpiece of a theology that has shaped Western values ever since (Sherwin
43).
Many of the historical moral theorists like,
Thomas Aquinas, Jean-Jacques Rousseau, GWF Hegel, Friedreich Nietzsche,
Jean-Paul Sartre, and Kant saw women quite differently from men. They thought
that women were morally unfocused and not interested in the level of generality
required for moral thought. To them it was obvious that men were naturally
associated with reason. Women’s shortcomings justified excluding them from
active participation in political life and for limiting their power and
influence to the home. These theorists thought that the subordination of women
was natural and saw in women a willingness to accept these facts passively.
Sherwin quotes Rousseau who said bluntly that women were suited by nature,
“… to please and to be subjected to man … Woman is made to put up even
with injustice from him. You will never reduce young boys to the same
condition, their inner feelings rise in revolt against injustice; nature has
not fitted them to put up with it” (Sherwin 44).
Sherwin says that even the modern theorist,
John Rawls (71), thought he could come up with an equitable theory without the
special perspective of women. He suggested that “heads” of households
could simply represent the whole family. He did not address the patriarchal
societal tendency to allow men to disregard and regularly violate their wives
and children. Neither did Rawls address the sexual division of labor (Sherwin
44).
Robert Nozick’s Anarchy, State and Utopia
(74) and David Gauthier’s Morals By Agreement (86), illustrate that the
presumption that philosophy can be gender-neutral perpetrates male privilege.
Nozick and Gauthier assume women are moral agents, but the moral concerns
examined are always most salient from a male point of view (Sherwin 44).
Sherwin relates complex ways in which the
implications for women of traditional moral theory lead to “moral
madness”. Traditional theories follow one or more patterns:
“1. They deny that women are capable of full
moral reasoning;
2. They
draw a distinction between public and private moral thought, restrict women to
the domain of the private and then deny that the private domain constitutes
moral thought;
3. They
force women into a series of perverse moral double binds;
4. They
make invisible the domains wherein women’s moral decision-making is
concentrated.” (Sherwin 44-45).
Freud thought women were incapable of justice
because they were too personal and were unwilling to evaluate ethical claims
using abstractions. Kohlberg deliberately excluded women from his study on the
development of moral reasoning, as their inclusion would contaminate the data.
He was actually acknowledging that women used different patterns to develop
moral reasoning skills. Kohlberg was right in that when the tests he developed,
using male norms, are applied to women, men score higher (Sherwin 45).
Women needn’t bother trying to convince men
that their moral reasoning abilities are equal, but that the gender differences
both deserve recognition as legitimate, important elements and need to be added
to the public sphere of discourse (Sherwin 46).
A study showed that women focus on the details
of relationships and are innovative in trying to find solutions to help all and
avoid harm to anyone. Men tend to identify appropriate rules that govern the
situation, select the solution most compatible with the dominant rule, even if
someone’s interests may be sacrificed to justice. Gilligan named the way of
women, as an ethics of responsibility of care and the men’s, as an ethics of
justice. An ideal ethics would include both frames of reference. Gilligan asks
that we expand moral considerations that consider feminine thinking to be
relevant – not deficient (Sherwin 46).
Gilligan noticed problems interpreting women’s
development and began to connect these problems to the fact that women have
been historically excluded from theory building studies about the psychological
development of morality (Gilligan 1). She found disparities between what women
experienced and what the developmental charts said was supposed to happen at
different points of development. It was previously judged that women’s not
fitting in male designed stages was a problem with the women (Gilligan 2).
Instead feminists argue that it’s a problem of not including women in
developing the theories in the first place that is the real problem.
Gilligan attributed the different
“voices” she heard from the women she studied to the different social
context they lived in: social status, power differences, reproductive
biological differences and the relations between the sexes themselves all
worked to shape the different experiences men and women face in their moral
development (Gilligan 25).
Gilligan discusses discoveries in social
science where formerly considered “neutral” theories are now seen to
reflect observational and evaluative biases. She notices how accustomed women
have become to viewing the world through men’s eyes. The theories about moral
development have adopted male life experience as scientific “norms”;
society and women themselves have tried to fashion women out of male cloth.
Freud built his theory of psychosexual development around the male child
leading to his Oedipus Complex; in the 1920’s Freud tried to fit women into the
male conceptions and then came to his famous “envy” conclusion that
said women failed at this developmental stage (Gilligan 6,7).
From the developmental differences Freud found
in women he theorized, “for women the level of what is ethically normal is
different from what it is in men,” he further concluded that women
“show less sense of justice than men”, that they are less ready to
submit to the great exigencies of life, that they are more often influenced in
their judgments by feelings of affection or hostility” (Gilligan 7). Part
of a boy’s developing a male identity involves separating from his mother; for
girls their identity formation is intermingled with attachment to the mother. Thus,
the male identity is threatened by intimacy, and the female identity threatened
by separation. As a result, males have more trouble with relationships and
females have more trouble with individuation. If these insights are put
together with the psychological development markers made from studying men, it
is clear to see why females are seen to “fail” because of their
difficulty with separation (Gilligan 8,9).
Women find self definition within their
relationships and judge themselves based on their ability to care. A woman’s
place in a man’s life has been that of caretaker; male dominated theories of
psychological development, have tended to minimize the value of women’s caring.
When development scales get to stages of maturity and stress autonomy, women
are seen as weak because of their continued concern for relationships (Gilligan
17).
Gilligan describes Kohlberg’s 6 stages of moral
development; research which functioned on the assumption that females
“didn’t exist”; he studied the moral development of 84 boys over a 20-year
period. Despite the obvious exclusion of girls in his work he claims his stages
are universal; it is rare however, that females ever reach his higher stages of
development (Gilligan 19,20,21).
When the moral development of women is studied,
problems derive from conflicting responsibilities, not competing rights; the
resolution of these conflicts comes in contextual and narrative form, not from
abstraction and formality. By adding a new dimension of interpreting girl’s thought,
it becomes possible to perceive development that was not perceptible before. By
doing so, one can consider differences with understanding rather than in terms
of better or worse (Gilligan 19).
Erickson noted that women’s identity had as
much to do with intimacy as with separation, but he did not incorporate his
observation in his developmental chart (Gilligan 12,13).
Gilligan suggests the contrasting images of
hierarchy in children’s moral development illustrate two views of morality that
are complementary rather than oppositional or sequential. She admits that it
goes against the bias of developmental theory that attempts to maintain the
hierarchical system (Gilligan 173,174).
Miller calls for a new language in psychology
that would separate the vocabulary of oppression and inequality from
descriptions of caring and relationships, in addition to a call for social
equality (Gilligan 48,49).
Noddings goes further than Gilligan and says
caring is not only morally significant, but is the only legitimate moral
consideration; the proper locus of ethical thought is the quality of
relationships. She urges that we explore the mothering relationship as an
alternative to the contractarian anonymous, isolated individual model (Sherwin
47).
Sherwin says that theories should involve
models of human interaction paralleling the complexities involved in
relationships and recognize the moral significance of actual ties that bind in
relationships (Sherwin 49).
Feminist Ethics
Feminist ethics differs from feminine ethics in
that it comes from the explicitly political perspective of feminism; the
oppression of women is not morally and politically acceptable. It goes beyond
women’s actual experience and moral practices, criticizing practices that form
their oppression. Feminist ethics recognizes women’s moral perspective, the
ethics of care, and seeks to expand our moral agenda to include caring.
(Sherwin 49).
Sherwin warns that we must be careful with our
caring philosophies because the very nurturing and caring we excel at are
survival skills developed in an oppressed group that lives next to the
oppressor. A potential danger of feminist ethics is that caring about others
leads women to concentrate their energies on the needs of others – even to the
point of protecting their oppressors (Sherwin 50).
A job for feminist ethics is to distinguish
when care is appropriate and when it is best withheld. In feminist ethics,
evaluating the moral value of specific acts and patterns of caring involves
making political judgments (Sherwin 50).
We should guard against letting preferences,
especially ones tied to feelings, be granted full range in ethical matters.
Morality must respect sentiment, but not give it full moral authority. Feminist
ethics involves a commitment to justice and to caring (Sherwin 52).
People don’t exist in abstraction, separate
from social circumstances; moral directives to disregard the personal under a
“veil of ignorance” are pernicious for political and ethical
analysis. Feminist think that moral analysis needs to examine persons and their
behavior in the context of political relations and experiences that are missing
from most ethical debates (Sherwin 53). The goals of feminist ethicists are to
include context, relationships, life experience and the oppression of women to
ethical debates.
It is also important to distinguish liberal
ethics from feminism. Communitarian theories are conservative, committed to
protecting community values without evaluating their status in the hierarchies
of oppression. They privilege the status quo; feminist ethics challenges it.
The principle insight in feminist ethics is that oppression, however it is
practiced, is morally wrong. Feminist ethics demands that the effects of any
decision on women’s lives be a feature of moral discussion and decision making.
Feminist ethics applies to political perspectives and how ethics must be
revised to address the dominance and oppression affecting women. Feminist
ethics has taken the lead in pursuing the analysis of all forms of oppression
in its ethical analysis (Sherwin 54).
Feminism and Moral Relativism
Metaethics involves theorizing about the nature
of ethics. Much of its work is abstract and uses technical language that is
exclusionary and elitist. Few feminists have patience for intellectual puzzles
that really have no practical relevance. Absolutist principles are often
oppressive, and seem to undermine the strength of moral arguments against
oppression (Sherwin 58-59).
Feminist Ambivalence About Relativism
Feminist ethics can’t go along with gender
discrimination despite its overwhelming acceptance in our society. Moral
relativism says moral judgments must be made by the existing norms of the
community, but the whole of our community oppresses women (Sherwin 60).
Feminists do not only say that sexist practices
are wrong for subjective reasons, they think they are wrong objectively also.
Relativism is certainly not a theory that feminists can abide by. According to
relativism, genital mutilation is ok in countries that accept its practice. A
survey in 1983 in northern Sudan found 82% of women and 87.7% of men approved
of the practice (Sherwin 62).
Relativism promotes authoritarianism in ethics.
Our culture is structured on dominant relationships. Moral authority is claimed
by the dominant group and is a part of the structure of oppression. Negative
moral judgments toward women are very powerful because we were taught that part
of our very femininity was to attempt moral approval – these authoritarian
models maintain social order, (they maintain us in our places). Relativism is a
way for ethics to legitimize the oppressive social organization (Sherwin 63).
Feminists are aware that the very same event
can be seen quite differently i.e. the birth of a child, a miscarriage, or
permanent sterilization, by different women depending on their vantage point
and life situation. How someone perceives the world is not a given. Each person
sees reality according to what the dominant forces in their world have taught
them to see. That is until their consciousness is raised through political
analysis; learning about alternative views can give someone other ways to
perceive reality. We remain oppressed when we perceive only what the oppressors
perceive, when we are held back by their values and categories (Sherwin 64).
To presume that it is a possible goal to come
up with one moral theory or rule leads to domination by the people who are in
power to enforce that view. Moral theory must retain the authority to assert
moral judgments, while at the same time, allowing for the diversity among
women’s perceptions of reality (Sherwin 65).
Sherwin discusses Trebilcot’s three principles
in the context of women’s space:
“I
speak only for myself I do not try to get other wimmin to accept my beliefs in
place of their own There is no “given”” (Sherwin 66).
Even Treblicot says that these do not fit in a
patriarchal milieu. This suggests that the application of relativism itself
depends on the absence of patriarchy (Sherwin 66). In other words, if the
entire community has an equal say in decision-making then relativism might
work, but not in patriarchy.
Feminist Moral Relativism
To evaluate relativism, we must first know the
context of the issue and the community in which we are talking, along with how
the standard was reached, whose interests were served and what are the
procedures for discussion and change. We cannot treat all communities the same;
(what about a lesbian community) nor should we grant authority to all moral
standards accepted in the community. Power relations shape the very values of
the community and are interconnected within the political structures. So, we
must pay attention to the existence of oppressive practices in a community (Sherwin
67).
A problem is that to many feminists the
communities’ moral standards are not totally trustworthy so we need a much
deeper measure than community agreement to find moral truth. How a community
gets to moral decisions and the reasons for those decisions must be taken into
account in evaluating them (Sherwin 67).
We cannot understand morality by reason alone,
with each rational agent using reflection to come up with a moral law. We learn
about moral standards by talking about them within our community and they can’t
be worked out separate from their context. To be democratic about developing
moral standards ALL in the community must partake in developing the standards –
not just those with political power. If developed through oppressive forces it
is not likely that safeguards will be in place to avoid further exploitation of
the already oppressed (Sherwin 68-69).
It is unlikely that one moral code would be
adapted by all communities, hence absolutism is out of the question. Criteria
are needed to limit the acceptable modes of moral standards in a community.
From a feminist perspective, we must address whether or not oppressive
circumstances limit input from some in the community and whether the compliance
of the oppressed has been coerced or reflects real support (Sherwin 70).
The Advantage of Feminist Moral Relativism
Sherwin discusses Wong and his theory that
relativism should allow for each side to have differing opinions as long as
they can justify them and that each side should be tolerant of the other’s
views and seek to coexist (Sherwin 70).
Sherwin thinks that testing the moral views of
each side of an issue (like abortion) should not simply include their
connection with a “well- established moral system”. Rather the
justifiability of the side must be determined by the nature of its particular
moral system; how did it evolve, whose interests are served, and most important
whose interests are sacrificed? With abortion, conservatives base their
argument on the life of the fetus. Their arguments are linked to a history of
patriarchal control over women’s sexual and reproductive lives. They protect
the life of the fetus while it is in the mother’s body; they do not illustrate
concern for the millions of starving and abused children now living in the
world. They do not campaign to get women the needed housing, child care, and
educational services that many women need if they are to give birth to their
fetuses instead of aborting them. Many antiabortionists are actually engaged in
limiting these kind of supports (Sherwin 71). Their attitude is, you gave birth
to them now you must take care of them.
Among the staunchest antiabortion groups is the
Catholic church, run undemocratically by celibate males. Women are not included
on the decision making here. Almost every nation’s laws about abortion come
from legislative bodies that are mostly male. Sherwin thinks Wong’s
justification principle leaves out the history of oppression in favor of
established traditions (Sherwin 72).
Until conservatives are willing to develop a
moral policy on abortion in conjunction with all the women who will be affected
by it, their position doesn’t constitute a moral position that we are obliged
to respect. To use the example of genital mutilation, unless there is evidence
to believe that women, free of patriarchal tyranny, would choose this practice
we cannot see it as an acceptable local custom (Sherwin 74).
Feminist moral relativism is absolutist about
the moral unacceptability of oppression, but is relativist on other moral
matters (Sherwin 75).
Feminist Ethics of Health Care: Context’s Role
Sherwin discusses several theorists who agree
that we must take into account, especially in matters of life and death, the
context and the people in the situations involved and not just some abstract
principles. The pursuit of universal, rather than contextual, ethics seems to
restrict the very scope and analysis of ethics; broad principles are inadequate
to apply to the complexities of bioethics and they obscure the most important
facts about a situation. We must be precise about the term “context”
because mainstream ethics does include context, but is not feminist in nature
(Sherwin 76).
Sherwin calls the 1970’s the early days of
medical ethics. At that time theorists tried to solve dilemmas using Kant,
utilitarianism etc, and soon it became obvious that it wouldn’t work. She uses
several examples of male theorists who agree that we must solve things on an
individual case basis. She discusses Albert Jonsen and Stephen Toulmin’s book The
Abuse of Casuistry 1988; they recommend an informal model of moral
reasoning called, casuistry built around a, “recognition of significant
particulars and informed prudence” (Sherwin 79).
Sherwin recommends using the concrete circumstances
of actual cases and the specific maxims in front of the people involved. When
one looks at ethics journals and articles about ethical issues today one can
see that specific cases are used, not universal rules (Sherwin 80). I agree that
the people involved should certainly be involved in ethical decisions
concerning them. This goes along with my goal of having ethics be practical,
not simply intellectual discourse, so that it cam meet the patient’s needs.
Theory-Based Alternatives
A basic assumption in medical ethics is that
the health care providers are obligated to place priority on the welfare of
their patients, even if greater utility could be gained by other means.
Feminist ethics goes further and asks that we also consider things on the basis
of the person’s place within hierarchical structures; special weight should be
given to help undermine oppressive practices. Situation ethics is popular with
health professionals because it’s user friendly. It directs agents to seek a
loving and humane solution, but does not identify which solution is loving and
humane (Sherwin 81).
Most medical ethicists and many feminist
ethicists see a place for principles in ethics, but deny that principles alone
are enough. Oppression is not a phenomenon that can be studied in the abstract;
specific details about the form of oppression and the relevant features of the
situation must be considered to make sense of the moral concerns involved
(Sherwin 82).
Similarities: Feminist and Medical Ethics
Both feminist and medical ethicists are
critical of traditional assumptions, made by mostly contractarians, that the
role of ethics is to clarify the obligations that hold among persons viewed as
pragmatically equal, independent, rational and autonomous (Sherwin 82).
Both agree with feminine ethics that we pay
attention to interdependent, emotionally varied, unequal relationships that are
our lives. Medical ethics does admit that the relationship between doctors and
patients is far from equal, and the model of contracts negotiated by rational
independent agents does not fit. The patient is dependent, vulnerable, and in a
disadvantaged position due to illness (Sherwin 82-83).
Both evaluate behavior in terms of the effect
on quality of relationships involved. Both agree that the establishment of
trust is vital between physician and patient. Both use the considerations of
caring, they call it beneficence, and assume it is owed to patients. Compassion
is frequently claimed to be more important than honesty or justice in medical
ethics. It may then appear that medical ethics is also feminist, but medical
ethics fails to be committed to ending oppression the very core of feminist
ethics (Sherwin 84).
Silence as Tolerance
Sherwin call physicians “the patriarchs of
the body”. She asserts that current medical practice is a powerful
institution that is involved in the oppression of women. It thrives on
hierarchical power structures that themselves serve to maintain domination and
subordination (Sherwin 84).
Feminist criticisms include: the institutional
structures, authoritarian control, different treatment of male and female
patients, doctors’ obsessive interest in women’s reproductive functions, their
perpetration of sex-role stereotypes, reinforcing women’s subservience in the
family. Medical researchers set their agendas with respect to women’s
conditions according to male-defined interests in women. They authoritatively
dictate patterns of normalcy in mental and physical health that serve the
interests of men (Sherwin 85).
Women are discouraged from developing self-help
behaviors that would give them power over their health. They are urged to
measure their behavior with standards that most women can’t meet, so the women
are blamed for overeating, smoking, not exercising enough, or for doing the
above too much. Women are encouraged to be dependent on medical opinion rather
than to listen to their intuitions about the welfare of their bodies and the
people they care for. Men are in the positions of power in medical institutions,
women are support staff and caretakers. Doctors decide if a woman’s request for
an abortion is legitimate and when her reproductive organs become unnecessary
and a threat to her well being. Doctors go along with advertiser’s design of
the ideal woman and help us fit these expectations with plastic surgery and
diet programs. With a male dominated legislature and legal system, doctors
decide how much money to spend on life saving measures to a preemie infant,
while funds are not available to protect millions of women and children from
starvation (Sherwin 85).
Doctors medicate women with socially induced
depression and anxiety which helps perpetrate oppression and deflects attention
from the injustice of their situation. Having the authority to define normal
and pathological and to coerce compliance to its norms, medicine strengthens
gender roles and racial stereotypes thus reinforcing already existing power
structures. Some offer advice that explains and excuses wife battering, incest
and male sexual aggression and thus inhibits evaluation of these practices in
moral and political terms (Sherwin 85).
Institutionalized medicine is accepted in
society without question. Medical ethics has not addressed feminist issues and
thus helps to legitimize the existing system. Lately medicine has incorporated
ethics into their credentialing; they have a few questions on their exams and
spend a few hours of their schedule in studying ethics. This is suspicious
because it makes the public think that they are concerned with ethics and
serves to further maintain the public’s trust. When abuses become public
doctors renew their commitment to moral education; doctors are not required to
soul search or to change their traditional ways (Sherwin 86). Doctors use ethics
to inspire trust and thus maintain their public image of being the “kings
of morality”.
Medical literature and conferences are
concerned with establishing ethical rational for the practices already in place
in health care. Criticism is reserved for new practices like fetal tissue
research, paternalism because it goes against social norms and controversial
issues like abortion. There is little evidence that medical ethics has
addressed the oppression of women, people of color or the disabled (Sherwin 87).
Definition of Context
Sherwin asserts that most non-feminist
ethicists examine medical practices separately (genetics, abortion) isolated
from historical and political contexts that they occur in. When considered only
abstractly, it is concluded that there are no violations of moral rules. They
say the only moral dilemmas of each practice will be ones that concern specific
cases. Then in a case study approach it is assumed all details can be clarified
with a short description. Developing a context-specific approach to case
analysis for an issue like surrogacy, often shapes the outcome of the analysis;
it is easy to identify strong grounds in specific cases by illustrating an
example that is benign and desirable – and vice versa (Sherwin 90).
From a feminist perspective we need to clarify
the practice within the broader patterns of women’s subordination. We need to
ask what affect will increase surrogacy have on the status of women’s
oppression? (Sherwin 90).
Other Features of a Feminist Ethics of Health
Care
Both medical and feminist ethics are concerned
with quality and the nature of particular relationships, because both
understand that rights and responsibilities depend on roles and relationships
that exist among people with differing status and power. New models of
interaction are needed to develop a system that is less hierarchical and less
focused on power and control (Sherwin 92).
Feminist ethics will demonstrate that the role
of the patient is feminine and thus requires submission to authority and being
grateful for attention. Most women know they’re vulnerable to medicine’s power
and laugh with suffering to avoid hostility and impatience and frequently
apologize for needing attention. Feminism is invested in redefining feminine
roles that will be great in health care too (Sherwin 92).
Medical practice perceives the body, under
patriarchy, as feminine; medicine’s role is to explore, manipulate, and modify
the body, the female body is particularly important. Sherwin relates from Body/Politics:
Women and the Discourses of Science by Jacobus, Keller, and Shuttleworth,
that there are significant political and moral questions about the relations
between medicine and the female body. Discourses common to medicine and science
reflect and support attitudes that reinforce patriarchy (Sherwin 93).
Many women find alternative practices in health
care more empowering for them than traditional allopathic medicine (Sherwin
93).
The agenda of traditional bioethics has been
concerned about the responsibilities of the health professional; feminist
ethics reaches much farther and explores roles open to patients and
non-professionals in seeking health and health policy (Sherwin 93).
Disability
We need a feminist theory of disability, which
would show how disability is a socially construed response to a biological
condition. Medicine has created arrangements and constructed attitudes that
lead to the disabled feeling alienated from their bodies and frustrated by
their socially supported sense of failure (Sherwin 90,91).
Thirty million women in the U.S. have
disabilities and are among the most frequent users of health care; the overlap
of sexism combined with the discrimination against those with disabilities
severely limits employment and education to these women. Even to obtain
non-medical services (wheelchairs, transportation, Social Security benefits and
personal care attendants) these women must obtain certification of need from a
doctor, despite the fact that doctors have not been trained in or exposed to people
with disabilities (Saxton 36).
Medical schools offer virtually no training in
political or social problems posed by being disabled; nor do they learn about
the further impacts of sexism, racism or homophobia on disabled women (Saxton
36).
The medical system lags in addressing the
reproductive health needs of disabled women; there are myths that disabled
women are not sexual beings let alone capable of motherhood. Most medial
research in this regard has focused on male sexual function and reproductive
abilities (Saxton 36).
Because women have not worked long enough in
the Social Security System to qualify for Medicare, they must fight harder than
men to obtain any benefits due to them. “Skimming”, a strategy to
weed out patients who are a financial risk to insurance companies, hits women
the hardest. Women with disabilities tend to be poor, unemployed, and unlikely
to file lawsuits against abuses they face; they require pro bono legal services
and societies encouragement to speak out (Saxton 36,37).
Feminists should certainly join with disabled
women in their outrage that doctors are allowed to be seen as experts in
matters they don’t even know about.
Abortion
Feminist ethics differs from what liberal
arguments usually offer. Feminists evaluate abortion policy within a broader
framework according to its place among social institutions that support the
subordination of women. In contrast, non-feminists consider moral and legal
permissibility of abortion in isolation. They ignore (and thereby obscure)
relevant connections with other social practices, including the ongoing power
struggles in the sexist society over the control of women and their
reproduction. Feminists take into account actual concerns that particular women
use in decision making on abortion. (i.e. the nature of her feelings about the
fetus, relationship with partner, other kids she might have, various
obligations to herself and others). In contrast, non-feminists, evaluate
abortion decisions in the abstract (what sort of being the fetus is); from this
perspective specific questions of context are irrelevant. In addition,
non-feminists in support of choice, grounded in masculinist conceptions of
freedom (privacy, individual choice, person’s property rights with own body)
which don’t meet the needs, interests, and intuitions of many of the women
concerned. Feminist see the moral issue involved differently. Non-feminists
focus on morality and legality of doing abortions, feminists say that
accessibility and delivery of services must be addressed (Sherwin 99-100).
Feminist ethics supports a model for the
provision of services. We should develop an explicitly feminist morality
regarding abortion that reflects deep appreciation for complexities of life,
refusing to polarize and adopt simplistic formulas (Sherwin 100).
Women and Abortion
The biggest difference with feminist perception
on abortion is the attention it gives to the interests and experiences of
women. We regard the effects on the lives of women individually with unwanted pregnancies
and collectively as the main element in moral examination of abortion. It is
considered self evident that the woman is subject of principle concern. Many
non-feminists don’t see the pregnant woman as central and is thus rendered
invisible; most of the attention has focused on the moral status of the fetus
(Sherwin 100-101).
Due to recent threats regarding the loss of
abortion rights women have developed self-help groups that get together to
examine their breast and cervixes, explore home type remedies for infections
and openly discuss sexuality and health. Although medically and legally
controversial, some groups do menstrual extractions to remove the contents of
the uterus either during menstruation or to remove a pregnancy, taking the
power over their reproductivity out of legal or medical hands (Reinhard 94).
In 1971, The Federation of Feminist Women’s
Health Centers, was started by Carol Downer. Downer used herself as a model to
teach women how to examine their own cervixes. With this knowledge women could
tell the medical establishment where to go – they could use knowledge to
empower themselves (Reinhard 94).
In the United States the self-help groups stay
underground to avoid the hostility directed against abortion clinics. Downer
estimates that 20,000 menstrual extractions have been performed in other
countries of the world over the last 20 years. The extractions are done in
groups using a device called a Del-Em, put together with medical and household
equipment; a flexible plastic tool, like a straw, is hooked up to a syringe
with a one-way valve, after it’s placed in the uterus it can pump the uterine
contents into a jar. These sterile procedures can be done within the first 8
weeks of pregnancy (Reinhard 94).
Doctors warn these extractions can lead to
infections and other complications. The California Food And Drug Administration
says that the Del-Em is not legal, as all medical devices must be tested.
Abortion must be done by a licensed physician by law, but it would be difficult
to prove whether a woman was extracting menstrual blood or a pregnancy
(Reinhard 94).
As a nurse, I know that any abortion can lead
to an infection or other complication. Knowing too well how doctors break
sterile technique and put patients at high risk for infection all the time, I
would bet that women themselves, having more at risk – their own health and
bodies, would be VERY cautious about sterile technique. (As if any woman
couldn’t learn sterile technique). The question of legality is absurd because
if it were not for the legal system’s nonsupport of women’s right to control
their bodies, they wouldn’t have to take such desperate measures.
Feminists look at the role of abortion in
women’s lives; the need can be intense, no matter how appalling or dangerous
the conditions, women from diverse cultures and historical times have sought
abortions. Antiabortion activists seem to accept the costs despite life
threatening facts when abortion is legal; feminists value women, and judge the
loss of women’s lives a matter of fundamental concern (Sherwin 101).
Feminists realize women get abortions for
compelling, not frivolous reasons. Lack of access to abortion may mean that
some women will be forced to remain in oppressed conditions. Only the woman is
in position to weigh relevant facts. Feminists reject abstract rules to say
when abortion is morally justified. A woman’s personal deliberations involve
commitments to all concerned; there is no formula to evaluate all these complex
concerns (Sherwin 101).
Women’s personal deliberations about abortion
involve considerations that reflect their commitments to the needs and
interests of all involved including themselves, the fetus, and other members of
the family. No formula can balance all this. Feminists resist philosophers and
moralists setting agendas for these considerations. Women must be acknowledged
as their own moral agents. Even if a woman makes a mistake, no one else should
be able to overrule or judge her decision (Sherwin 102).
Having a child affects major physical,
psychological, social, and economic aspects of a woman’s life; she should have
control over the timing, frequency and incidence as it involves most of what is
valued in her life. It’s also linked to her sexuality. Her subordinate status
often prevents women from refusing men’s sexual advances; if they cannot end
unwanted access to their bodies, they then become even more vulnerable to these
particular men due to greater financial need and less opportunities to earn
money due to child care – she is forced into increased dependence – the cycle
of oppression continues (Sherwin 103).
Non-feminists act as if women can simply avoid
pregnancy by avoiding intercourse; these attitudes show little appreciation for
the power of sexual politics in an oppressive culture. Patterns of male
dominance frequently leave women with little control over their sex lives; they
are victims of rape from husbands, boyfriends, bosses, friends, uncles,
employers, customers, brothers, as well as strangers. Sexual coercion is often
not seen as such, even by participants, but is the price of “good
will”, popularity, economic survival, peace and simple acceptance. Women
are frequently physically or psychologically threatened into intercourse; women
are socialized to be compliant, sensitive to the feelings of others, scared of
physical power; men are socialized to take advantage of opportunity to get sex
and use it in obtaining dominance and power (Sherwin 103).
Women cannot rely on birth control; no form is
fully safe and reliable. For most who want temporary protection the pill and
the IUD are the most effective but carry significant health risks. Both
additionally pose threats of involuntary sterilization (Sherwin 104).
Because only women experience the need for
abortion, abortion policies affect them uniquely. It is vital to evaluate how
the policies affect the oppression. Feminists see this as the principle
consideration (Sherwin 105).
The Fetus
Contrasting with how feminists perceive moral
acceptability, non-feminists judge abortion on the moral status of the fetus –
whether or not the fetus lacks personhood. They argue about whether we give the
fetus human status equal to ourselves. The woman on whom the fetus depends is
seen as secondary; actual experience and responsibilities of real women are not
seen as morally relevant (unless it can be PROVED she is “innocent”
too, due to rape or incest). In some contexts, women are viewed as containers,
mere mechanical life support system (Sherwin 105).
Antiabortionists say that the genetic make-up
of fetus is determined at conception and genetic code is without question
human. They show pictures of it, even call ultrasound an infant’s first
picture. The fetus in its early stages is microscopic and indistinguishable
from other species, lacks capacities that make life human and of value. They
try to use sympathy to make the mother appear to be a killer, as if she’s
involved in an adversarial relationship with fetus. Antiabortionists encourage
people to identify with the unborn and not the woman whose life is at issue
(Sherwin 106).
Arguments that focus on similarities with the
fetus and infant fail to acknowledge that the fetus is wholly dependent; the
newborn infant is independent in maintaining its own vital functions (despite
needing care). Women who carry the fetus are seen as passive hosts whose only
role is not to abort or harm the fetus (Sherwin 107).
Medicine supports these attitudes with rapidly
expanding fetal medicine – they refer to the mother as a “maternal environment”.
Fetal surgeons see the fetus as their patient, rather than the woman. They are
ACTIVE agents in saving the fetus’s life (unlike the mom whose role is
passive). In the medical model of pregnancy, the mother and the fetus are
separate and in a conflict of interest. Increasingly women are described as
irresponsible or hostile toward their fetus; out of concern for the fetus,
doctors are seen as licensed to intervene and ensure women comply with their
advice. Courts are called in to support doctors’ orders when moral pressures
are not enough to assure cesarean sections and technologically monitored
births. Some states are even beginning to imprison women for drug abuse or
other socially unaccepted behaviors (Sherwin 107).
Physicians have joined antiabortionists in encouraging
a cultural acceptance of the fetus as a unique individual separate from the
mother, deserving their own distinct interests. Pregnant women are ignored or
seen as deficient, so they can be coerced for the sake of their fetus. The
interests of women are assumed to be the same as the fetus; a woman’s interests
are seen as irrelevant, immoral, unimportant or unnatural. By focusing on the
fetus as independent, it has led to denying women their role as independent
moral agents in deciding what becomes of the fetus they are carrying. The moral
question of the fetus’s status is quickly translated into a license to
interfere with a woman’s reproductive freedom (Sherwin 107-108).
A Feminist View of the Fetus
In a feminist account, fetal development is seen
in the context it occurs – in women’s bodies, rather than in the isolation of
imagined abstraction. Their very existence is relationally defined, reflecting
development in a particular woman’s body; that relationship gives those women
reason to be concerned about them. Rather than seeing the fetus as an
independent being, feminists suggest a more valuable understanding of
pregnancy, “as a biological and social unit” (Sherwin 109).
The fetus is morally significant but its status
is relational rather than absolute. Unlike us, fetuses don’t have independent
existence. It is not sufficient to consider persons simply as Kantian atoms of
rationality; persons are embodied, conscious beings with their own social
history. Personhood is a social category, not an isolated state. Persons are
members of a community, not undifferentiated conceptual entities (Sherwin 109).
No one other than the pregnant woman can do
anything to support or harm a fetus without doing something to the woman who
nurtures it. Because of this inexorable biological reality, responsibility and
privilege of determining the fetuses specific social status and value must rest
with the mother. The value the woman places on her fetus is the sort of value
that attached to a budding human relationship (Sherwin 110).
Fetuses are not persons; they have no capacity
for relationships; newborns are immediately persons because of their
communication and response (Sherwin 111).
Abortion’s Politics
Sexual hierarchy must be taken into account
with abortion. Most abortion opponents oppose sex outside of heterosexual
marriage and support patriarchal patterns of dominance in these marriages. They
say abortion allows women to get away with sex outside of marriage and supports
a woman’s independence from men. The intensity of the antiabortion movement
correlates with increasing strength of feminism. The original campaign against
abortion can be traced to the middle of the 19th century – the time of the
first significant feminist movement in the US. To both sides the emancipation
of women is involved. More is involved than the life of the fetus (Sherwin
112-113).
If we place abortion within the larger
political framework, we see that most antiabortionists support conservatism
that seeks to maintain dominance. Led by the Catholic church and other
conservative institutions who not only endorse fetal rights, but male dominance
in the church and home. Most abortion opponents also oppose birth control and
all forms of sexuality other than monogamous reproductive sex; they also resist
having women in leadership roles in their institutions. They also support
economics that support the wealthier classes and ignore the needs of the
oppressed and disadvantaged. Although they say they are committed to human
life, many systematically work to dismantle social programs that give
necessities to the poor (Sherwin 113).
To antiabortionists, abortion is not an
isolated practice, their opposition centered on the social values that support
the oppression of women. Most deny any legitimate grounds for abortion, other
than to save the woman’s life – some, not even then. They think pregnancy can
and should be endured; if the mother doesn’t want to care for the child, they
assume adoption is easy (Sherwin 113).
This, in a world full of homeless babies and
children desperately needing to be adopted: AIDS babies, handicapped, and
minority babies. Even if you give birth to a healthy child and have people
waiting to adopt, it is very difficult to give a baby up for adoption. An
intense bond forms over the full-term pregnancy. Pregnancy is not just a 9-month
commitment, it’s a lifetime responsibility which places a disproportionate
responsibility on the woman. An ethics that cares about women would recognize
that abortion can be their only recourse (Sherwin 114).
Expanding the Agenda
Feminists look at abortion in context of power
and oppression, they look beyond moral or legal acceptability. Feminists say we
must evaluate the morality of ensuring the safety of abortion. This includes
removing class, racial, economic and geographical barriers to all women
(Sherwin 114).
Feminism demands respect for women’s choices
and moral agency. Many political campaigns for abortion rights make it a
medical matter, not personal, suggesting that doctors can be trusted to make
choices for women (Sherwin 114).
Antiabortion advocates have personalized their
attacks and focused on harassing women with their protests as they enter and
leave clinics. This is certainly not conducive to positive health care and is
objectionable to the ethics of health care. Feminists need to develop an
analysis of reproductive freedom to include sexual freedom as defined by women,
not men; it would include a woman’s right to refuse sex. Freedom from oppression
itself an element of reproductive freedom (Sherwin 115).
Feminists value fetuses that are wanted by the
women who carry them and oppose practices that force women to have unwanted
abortions. We must see that women get adequate support services to care for the
children they would otherwise be forced to abort and with support would choose
to carry (Sherwin 116).
Reproductive Technologies
Feminist writers take a broad perspective when
looking at reproductive technologies; non-feminists take a narrow view. A
definition of the new reproductive technologies: to facilitate conception or to
control the quality of fetuses that are produced, including artificial
insemination, ova and embryo donation, invitro fertilization (IVF), gamete
intrafallopian transfer (GIFT), embryo freezing, prenatal screening, and sex
preselection. Up coming technologies are embryo flushing for genetic inspection
for transfer to another woman, genetic surgery, cloning, and ectogenesis (fetal
development wholly in an artificial womb), racial eugenic planning, contractual
pregnancy (surrogate mothering), almost all of this is done to women and their
fetuses (Sherwin 118).
The basic concern according to Sherwin, about
the new reproductive technologies is that they are being marketed and developed
in ways that increase doctor’s control over women’s bodies (Sherwin 25 (Holmes
& Purdy)).
Private & Public Interests
It is useful to remember that historically
humans have wanted to control reproduction. Usually technological and reproductive
choices are seen as private decisions; feminist think we should evaluate them
within the broader domain of oppression. Must look at the political, social and
economic effects along with the effect on the lives of those concerned (Sherwin
118).
Medicine is bent toward technology
(technological favoritism) as medical education, public policy and the profit
motive give technology as a measure of medical progress. Implementation
decisions are usually left with those involved, despite societal effects (Sherwin
118).
There are patterns governing the use of
technology. Initially innocent help for specific problems, end up nearly
universal, coercive application to the public. (Electronic fetal monitors,
ultrasound, prenatal screening and IVF). Private decision making is not sufficient
because the broad effects go beyond specific users (Sherwin 119).
These technologies are likely to bring about
profound cultural changes. With the increased possibility for intervention,
there is a greater opportunity for those in power to control technology.
Throughout history, those in positions of power and authority have sought to
exercise it over the reproductive and sexual lives of those without power.
(Plato saved for the philosopher-kings, the authority to arrange the
reproductive pairing for all. The American South slave owners bred slaves like
cattle) (Sherwin 120).
In this century, legislators and religious
leaders have tried to restrict sex to married people, by proclaiming sex
outside of marriage illicit. Women who engage in extramarital sex are whores
and their offspring are labeled illegitimate (Sherwin 100).
Reproductive technologies can give people some
control, but the actual control lies with someone else (Sherwin 120).
IVF in Bioethics Literature
Test-tube babies, circumvent rather than cure
barriers to conception, usually caused by blocked fallopian tubes or low sperm
counts (Sherwin 121).
Artificial hormones that stimulate egg
production, often leading to dramatic emotional and physical changes. The
released ova are harvested from the woman’s body by laparoscopic surgery. Semen
is collected from the male. Washed ova and sperm are combined to promote
fertilization. Newly fertilized eggs are transplanted into woman’s uterus. The
woman’s blood and urine are monitored daily at 3-hour intervals. Women must
undergo extremely uncomfortable ultrasounds to tell doctors when ovulation
occurs. Some programs require the woman to remain immobile for 48 hours after
the eggs are inserted and some require 24 hours in the head down position. Procedure
may fail at any time and do most of the time. Most women endure the process
several times and may be dropped from the program at any time. Many
practitioners have attempted to obscure the fact that at best, only 10 to 15 %
of the cases are selected as suitable (Sherwin 121).
The issues bioethicists have raised vary. Some
religions, object to all reproductive technology as unnatural because it gets
in the way of God’s plan (Sherwin 121).
Some worry that our humanness won’t survive the
technology and that we will treat the artificially induced embryos as objects.
Some fear we will not be able to trace the usual categories of parenthood and
lineage and this will lead to our loosing aspects of our identity (Sherwin 122).
Those from secular tradition treat these issues
as superstition with no clear sense of what’s natural and no sense that demands
special moral status. All medical (and maybe all human) activity can be seen as
an interference with nature, but don’t necessarily present grounds for avoiding
such action (Sherwin 122).
Some theologians object to fertilization
outside the body, without joining of human persons, as they say it takes away
the value of the language of the bodies. Secular philosophers dismiss
objections against asexual reproduction in a properly sanctified marriage.
Nurturance of the child (which is the vital thing) does not depend upon the
sexual act (Sherwin 122).
Sometimes IVF and artificial insemination are
used to produce extra fertilized eggs whose moral status is questionable.
Theologians worry that we can anticipate cloning which violates God’s plan.
Theologians are concerned about cultural changes if reproduction is viewed as a
scientific enterprise; they are concerned that we won’t foresee the future
outcome and that we are on a slippery slope that will lead to more troubling
practices (Sherwin 123).
Secularists see things differently; they think
scientists are moral people and capable of evaluating each technology on its
own merit. So, IVF must be judged on its own consequences and not with some
future results that it may be linked to (Sherwin 123).
In order to obtain eggs, superovulation is
chemically induced to produce multiple eggs. Collection of the eggs is
difficult and the odds against conception are great. Several are obtained at
once with the hope that if several are injected into the uterus, at least one
will “take”. There are also some extras produced, we don’t have
answers to what should be done with them? Should they be frozen or donated to
other women who either can’t produce eggs or whose eggs are not genetically
desirable? Should they be used for research or thrown away? (Sherwin 124).
What if 4 eggs injected actually implant? A
woman’s body cannot deal with carrying this many fetuses. If you limit the
number of available eggs collected you risk not having enough for fertilization
(Sherwin 124).
Non-feminist theorists are concerned about
safety in reproductive technology, usually that of the fetus. There is a higher
rate of birth complications and defects with IVF, though most think it is safe
enough. No mention is made of danger to the mother or of the similarities
between clomid (artificial hormone that causes multiple ova release) and DES
(the female hormone that caused cancer in the offspring of women who took it).
There is no mention of other dangers such as the uncertainties about
superovulation, ultrasound, general anesthesia for egg harvest and embryo
transfer, very high rate of surgical births, and the emotional costs (Sherwin
125).
Most bioethicists focus on patient autonomy and
individual rights and refer to IVF as a private matter. Conception is private
so bioethicists think people who are infertile should not be denied parenthood
if it is attainable. The desires and needs of individuals are used as the
argument in favor of these technologies (Sherwin 125).
There is a question about distributing costs.
IVF is very expensive (and profitable), costing several thousand per attempt.
Since it is not usually covered by public or private insurance, it is only open
to those with money (Sherwin 126).
The Feminist Perspective
Feminists call for looking at all the effects
on the women involved before making bioethical evaluations. The way in which
IVF is usually practiced it does not totally foster personal reproductive
freedom. It is controlled by medical experts – not by the women who seek it. It
is NOT made available to all women medically suitable, only to those judged
worthy by the medical practitioners. There are many musts:
-Be
in a stable (preferably married) relationship with a male partner
-Have
“appropriate resources”, not only to pay for the procedures, but to raise the potential child
-Must
demonstrate they “deserve” this support
-None
to: single women, lesbians, those not in the middle class or beyond, those with
genetic handicap, or someone who is defined as deficient in mothering by the
medical specialist. Because it is denied to single women, IVF can be accurately
described as a technology for men who are judged worthy, despite the fact that
it is carried out on their wife’s body. So, it ends up establishing super power
to societies favored groups (Sherwin 127).
There is a clear pattern of ever-increasing
medical control over our reproductive lives. (I recall worrying whether the
doctor would LET me get my tubes tied. Who are they to tell me whether I want
more children?) Canada and the US’s medical societies have removed midwives,
thus eliminating women-controlled reproduction. Medically supervised
pregnancies and hospital births are demanded of us all. Women who fail to
comply may even be subject to criminal prosecution for endangering her fetus’s
health. In the hospital setting, who controls the amount of technology to be
used? They even get court orders for Cesarean sections if the woman doesn’t
“consent” (Sherwin 127).
An interventionist medical approach alienates
women from their reproductive experiences, treat women as passive bodies,
focuses on the technology, and is more concerned with the product than with the
process of reproduction. The more reproductive technology, the more power will
be in the hands of the “experts” (Sherwin 128).
Informed consent is questionable because some
technologies are presented as though they are proven treatments, when they are
actually experimental. Often techniques are transferred from animal husbandry
directly to women without clinical trials on primates. The mid-70’s was a time
with many devastating experiences for women: thalidomide, DES, the Dalkon
Shield, wide spread fetal x-rays, belated warnings about chemical
contraceptives, and the latest – silicone breast implants. Bioethicists seem
willing to rely on doctors’ assurances about product safety (Sherwin 129). Can
we women?
Many IVF clinics are poor with record keeping
and rarely offer full information about their low success rates. They encourage
media exposure of the mom with a baby, but leave out the dangers involved for
the woman and the high failure rate (Sherwin 129).
IVF in Context
Feminists look to see how reproductive
technologies fit in maintaining women’s oppression. Since technology is not neutral,
we must ask who controls it, who gains from it and how does it affect the
oppression of women? (Sherwin 129).
IVF definitely serves the interests of the
scientists who create and manipulate it. While obstetrical business falls,
reproductive technology fills the void with prestige and high profit. The new
technologies show that Ob-gyn doctors know more about pregnancy and women’s
bodies than they do themselves.
“it is NOT the concerns of people with
fertility problems that matter most. Much higher priority is given to the
concerns of those who invent, practice and promote the new technologies”
(Sherwin 130).
Why do so many couples feel compelled and
desperate to use these technologies? Some ethicists say it’s a basic instinct
to want your own child and that it makes it ok ethically to use the technology.
They don’t seem interested in the expectations placed on people to develop
these desires. It may be a self-fulfilling prophecy that society tells them
they must be desperate and the health professional assumes that they are. They
seek “normalcy” and thus verify the professional’s assumptions.
Feminist ethics looks at the social arrangements and values that drive people to
take on the high risks of IVF and other technologies. Women are told that they
are unfulfilled without motherhood (Sherwin 131).
Children also serve a symbolic function in that
they hold together the institution of heterosexuality. We invest large sums of
money in IVF to assure people their true genetic offspring, while leaving the
needs of starving children unfulfilled (Sherwin 132).
Feminist must evaluate whether the technology
reinforces social prejudices of oppression. Doctors use THEIR values (which
reflect privilege) to determine who qualifies for the technology and who is
sterilized. The black community has significantly higher infertility rates, but
infertility programs are overwhelmingly directed at whites. Embryo transfers
allow a dominant class couple to pay a poor woman of lower class to gestate
their fetus, sparing the genetic parents the risks and inconveniences of
pregnancy yet assuring the right genetic make-up of the child. Sex-selection allows
for the social preference for males, more males means increased influence of
male values (Sherwin 133).
Most non-feminist bioethicists treat the
reproductive technology like it was a consumer freedom to buy the technology.
Rather than increasing a woman’s freedom from oppression the narrow concept of
freedom of choice may help entrench the patriarchal idea of woman as child
bearer (Sherwin 133).
To feminists, the main question is whether
technology threatens to reinforce the lack of autonomy most women experience in
our culture. Technology with the potential to further control women’s
reproduction makes for a slippery slope (Sherwin 134).
Mendelsohn included a quote by Gloria Steinem
about the ability to learn the sex of a baby, “Given the increasing
ability to predetermine a baby’s sex—plus the bias toward having more sons
and the development of extrauterine birth—the worst of my fantasies passes
through decades of decreasing female population, and ends in some zoo of the
future with a dozen of us in cages beneath a sign: “Please don’t feed the
women” (Mendelsohn 186, 187).
Raymond quoted scientist Erwin Chargaff about
the new reproductive technologies, “the demand was less overwhelming than
the desire of the scientists to test their new techniques. The experimental
babies produced were more of a by-product” (Raymond 29). Raymond compares
reproductive technologies in medicine to religious fundamentalism and explains
that medical fundamentalism has two principles: The new reproductive dogma says
that infertility is a disease that they have the cure for; the second is that
anything that just might bring about a pregnancy is fair game to be tried on
the desperate women (Raymond 29).
The technology however, does not cure
infertility, it merely provides children to a very small number of the women.
They don’t make it known that most of the technology is experimental, can be
damaging to the women, and only sends 5-10% of the women home with babies. If
the new reproductive technologies were viewed in the same light as other
medical treatments, they would only be used for life threatening situations
(Raymond 29).
A double standard is involved in the ideology
of infertility; if it was the main concern, why not address the research to
finding out how to prevent and cure the causes of infertility? Some of the
causes are pollution, STD’s (sexually transmitted diseases), IUD’s
(intrauterine devices), and PID (pelvic inflammatory disease). The U.S.
National Center for Health Statistics (NCHS) and the U.S. Office of Technology
Assessment (OTA) say the infertility occurrence is one in twelve couples; their
studies do not show an increase in infertility from 1965 to 1982. The
infertility experts claim the figure to be one in six or seven couples (Raymond
29).
The definition of infertility has gone from the
inability to conceive after 5 years of unprotected sex to 1 year. (Now it can
be called the inability to conceive quickly).
The portrayal of infertility in the media is deceptive; a large percentage of
the women who undergo IVF have had children in the past with a different
partner, many go through it because of their spouse’s infertility, not their
own, (estimates claim the percentage to be 25%). Many infertility experts never
even test the husband’s sperm because they are reluctant to be tested (Raymond
29).
IVF once seen as a way out technology is now
the most conservative when compared to what has grown from the initial getting
the sperm and the egg together in a petri dish. Frozen embryos, embryo transfer
from one woman to another, sex determination, and use in genetic
experimentation and manipulation have surpassed IVF (Raymond 29,30).
Many of the women undergo IVF several times
(some as many as 10); the average cost per cycle is $5,000. A large number of
the IVF centers are for-profit as they are not federally funded, they must
depend upon funds from universities, hospitals, drug companies, private
organizations (often from venture capital) and patients. There is a real
entrepreneurial spirit among infertility doctors. Doctors at the Northern
Nevada Center say it will become a $6 billion a year business. Researchers
showed in 1985 that half the clinics reporting success never actually had a
live birth. Some claimed success by relating the number of implantations that
never followed to a birth or used the number of women whose hormone levels
became positive but did not necessarily mean they had an intact pregnancy. A
congressional subcommittee reported in 1989 that the rate for taking home
babies was 9%, but many of the clinics do not include live births in their
numbers (Raymond 30).
The number of healthy babies born is another
hidden statistic. There are reports citing increases in premature births, low
birth weights, more birth defects, and four times higher mortality rates among
IVF babies. (Raymond 30). We cannot afford to trust an industry that is using
us as experimental victims and also making big profits for doing so. This is
highly unethical behavior.
Believe it or not the industry has used its
very failures to justify developing more technologies. The problem of multiple
fetuses caused by superovulation and multiple implantations has led to the need
to justify aborting some of the fetuses, known as selective termination. It’s
not just that it leads to some of the fetuses being discarded, but the
procedure where doctors inject saline into the uterus to dispel some of the
fetuses can cause bleeding, premature labor to the mother and loss of or damage
to all the fetuses (Raymond 30). I would not at all be surprised if these same
infertility experts were on conservative band wagons damning poor women for
daring to seek abortions.
I agree with Raymond that IVF is being used as
tool to perpetrate violence against women with society’s sanction in the name
of medicine. Hyperstimulation of the ovaries and cysts frequently are the
result of the superovulation required to obtain numerous ovum required to do
IVF, to say nothing of the pain and trauma that are perceived as technical
imperfections by the experts (Raymond 30).
An Australian female student observed a vaginal
harvesting of eggs, done in full view of a medical school class. “At each
follicle puncture he (the doctor) retracted the needle and then drove it in
hard. The woman asked him to stop, because she was in great pain. But Dr. M.
would have none of that…and so (more) follicles were punctured against her
will…again each puncture unmistakably resembled a penetration” (Raymond
32).
Technical reproduction should not be included
in the pro-choice platform because it doesn’t really promote women’s rights.
Feminists have been accused of undermining reproductive rights, by being
opposed to technology; the opposite is actually true. The new technologies
favor the fetus’s and the potential father’s rights, but challenges the most
basis rights of the mother. As technology takes the fetus from the mother’s
body more and more so will it diminish the woman’s rights (Raymond 32).
Whose rights are valued in the case of India
where 80,000 female fetuses were aborted within a five-year period ending in 1983
after undergoing amniocentesis to determine the sex of the child? (Raymond 32).
Somehow, I know that the mothers are not willingly asking for the amniocentesis
to avoid having daughters. The language used in the new reproductive
technologies are illustrative of the desire to control and blame women when the
product (a baby) is not forthcoming. The very term infertile gets public
sympathy and support for technology. Doctors and medical researchers distance
themselves from women when they say that they “harvest” eggs from the
“uterine environment” or that the uterine environment was
“hostile” when an IVF attempt did not implant – the person
disappears. The hormones used to make a woman give out multiple ovums for IVF
sometimes lead to implantation of quintuplets, doctors blame the woman and call
what happened her having an atypical response or an inappropriate response to
the drugs (hormones), rather than researching the drugs themselves. There is
even a new technique that will “allow” a woman to be a “human
incubator” for her own eggs (Rowland 38).
Some other language includes,
“endocrinological environments”, “alternative reproductive
vehicles”, “surrogate uteruses”, “in vitro ovary” and The
American Fertility Society discussed women in an ethics report as
“therapeutic modalities.” Terms used with surrogacy are: “host
womb”, “gestational surrogate”, “gestational mother,”
“host mother,” “agent of gestation,” “total
surrogacy,” “partial surrogacy,” (as if a mother could do a half
way job of carrying a pregnancy), this type of referencing takes away from the
mother’s status in lieu of the genetic donor, the fetus is made somehow
personal by referring to it as the “gestation of choice”. When women
get used to being viewed as incubators they are dehumanized (Rowland 38,39,40).
A physician from Columbia University expressed
irritation that medicine had to go along with a woman’s body rhythms, “It
means you have to be available at the right time: you have to be a prisoner of
that woman’s cervical mucous and her ovulation time” (Rowland 40).
Medical texts describe the normal menopausal
state of the ovaries as “unresponsive” or say that they have
“regressed” or even “senile” (Rowland 38). I recently
watched “Lifetime Medical Television” (a show for doctors only); I
heard obstetricians talk about “controlling” the blood pressure
despite the widespread non-compliance of the women. When asked how they decided
whether or not to “control” a patient’s blood pressure at home or in
the hospital, one doctor said, “when they are at home they can get up and
walk around and do as they please, but in the hospital you have them as a
“captive audience.” I heard them explain to one another how they
decided when to “deliver” as if the mother had nothing to do with it.
I HEARD them differently than before – I now realize they had been saying those
type of things all along. We HEAR differently with our consciousness raised.
One last language tid-bit, the word obstetrician
has its root in Latin and means, “to stand in the way”. (Rowland
41).
Paternalism
There is much debate lately in non-feminist
ethics about less paternalism in health care. Physicians have traditionally
treated as they saw fit, patient consent was treated as a formality. There is
pressure growing to halt this clash between autonomy and beneficence (Sherwin
137).
Traditional theorists assume patients are not
always rational and don’t always act in their own best interests. They see
autonomy as a concept built to establish self-rule within a conceptual
framework structured around dominance relations (Sherwin 137).
Paternalism refers to the widespread practice
in which doctors make decisions for patients, without their full understanding
or consent. The basis of the decision is the patient’s best interest. Whether
or not it brings about the best consequences is questionable because it is the
physician’s perception of good, not the patients. It is an infringement on
patient’s autonomy, usually thought justified only when the patient is
incapable of making decisions. Feminism teaches us that we may be mistaken to
assume a powerful, authoritarian father (like the role the doctor plays) will
always act in the best interests of his wife and children. The power in this
type or arrangement easily abused (Sherwin 139).
The fact that the patient is in need of care
means he or she is vulnerable, weak, and frightened. Many doctors still believe
it’s their privilege and responsibility to make decisions for patients; medical
ethics decides what circumstances justify paternalism. Paternalism supporters
claim: illness compromises reason, decisions can only be made by one with
technical knowledge – the doctor, the patient’s belief in the doctor’s
mystified power is vital, and must be done in a confident authoritative manner
(Sherwin 140).
Patients & Reasoning
Women are patients far more often than men and
are usually the ones who bring others to the doctor and are the ones to speak
on their behalf. Women have heightened contacts with the medical institution;
their oppressed status requires us to pay special attention to ways in which
paternalism contributes to their disempowerment (Sherwin 141).
The status of a patient is feminine – they are
expected to submit gracefully to the powerful rational authority. Paternalism
mirrors and strengthens attitudes that support domination of what is perceived
as female (Sherwin 141).
“Reason” has been used as an
ideological tool by those in power to serve political purposes. Changing
normative concepts of reason play an integral part in politics of dominance.
Reason has political power, it’s a mistake to accept unqualified appeals to the
quality of someone’s reasoning ability without also assessing whose interests
are being served. Because of the roles men and women play in health care, it’s
important to reflect on ways in which gendered assumptions about reason have
infected the norms of medical practice (Sherwin 141).
There certainly are some conditions that do cloud
a patient’s reasoning ability: high fevers, serious accidents or neurological
disorders. However, many interactions between women and doctors are not about
illness; the medicalization of her normal reproductive cycle has been brought
under medical control. Healthy women see doctors for contraceptives and for
monitoring pregnancies. Even when women bring others to see physicians and are
not themselves sick, they may still be dismissed as incapable of making
decisions (Sherwin 142).
The fear of illness distorting reason, and
increasing dependence is affected by the fear itself, and is sometimes
magnified by the medical community itself. There are documented cases where
doctors manipulated women into having hysterectomies by using the fear that
“it” may return; “it” was the presence of pre-cancerous
cells, NOT CANCER cells on a Pap smear. By mystifying and assuming its too
complex doctors use medical information as a weapon that encourages dependency
and fear. The power of the healer is maintained by fear rather than strength.
If it is the case that fear really clouds reasoning ability, then open honest
communication by the physician could do a lot to prevent fear that impedes
reasoning (Sherwin 143).
How can we rely on the objective decisions from
doctors when many hold stereotypes about women that they are irrational or
stupid (especially minority women)? (Sherwin 143).
A second condition must be present for a doctor
to make a decision for a patient, there must be a reasonable probability of
harm. When patients truly are not able to make their own decisions, their needs
can be addressed by someone who will be able to make decisions for them that go
along with the patient’s values and interests. Doctors see themselves in this
role as their scientific outlook makes them objective and knowledgeable.
Feminists say scientific knowledge does not guarantee objectivity, nor is
objectivity the big concern – Caring would be better. Most physicians are
trained with an orientation to science over humanistic care, they may be
especially bad in this role (Sherwin 144).
Sherwin suggests we explore means of revising
the patient-physician relationship to seek ways of empowering those who are not
able to assert their own will (Sherwin 144).
Medicine & Science
The authoritarian medical model assumes that only doctors have skills and capacities
to make decisions. Patients, and their guardians, are too uneducated, too
emotionally distraught, or too stupid in the face of illness to make decisions.
Other health professionals have only partial training, without complete
training (and supervision) a little knowledge is thought to be dangerous
(Sherwin 145).
The evolution of specialized fields has
resulted in one doctor not being able to make decisions outside of his specialty.
Doctors committed to technology, have learned to trust instruments rather than
their own assessments or their patient’s reports. Labs take precedence over
(patients) subjective symptoms. This type of environment is alienating and
intimidates patients. Medicine has narrowed its focus to objectively measurable
symptoms rather than a holistic look at a person. As a consequence, doctors
don’t give TLC (tender loving care) (Sherwin 146).
TLC is viewed as feminine and has been devalued
in health care. As a nurse who believes wholeheartedly in the actual healing
power of TLC, I believe that without it there cannot be true healing. I HAVE
included TLC while giving emergency care to patients experiencing a heart
attack. The two concepts, healing via technical knowledge and caring enhance
one another and give each other more power. The patient gains power within
himself to aid healing when he is treated humanely; it boosts self his esteem
and can lead to more positive thinking which is known to help us heal.
Technical measures lend an aura of objective
truth to the findings in medicine. This science supports doctors claims to
dominance over health care workers and patients. It is unclear how much of
their judgement rests on a scientific foundation. There is a great deal of
intuitive reasoning and uncertainty involved in medical practice today, in
addition to scientific facts. In claiming authority medicine presumes a degree
of authority inappropriate to its level of knowledge (Sherwin 147).
Nurses certainly develop intuitive reasoning
experientially, but it is not valued or taken seriously by physicians and some
patients.
Medical
science is not infallible. The “scientific objectivity” of medicine
tends only to observe what it looks for and what it expects to see. Many women
have long complained of menstrual cramps, nausea in pregnancy, labor pain and
infantile colic, these were declared psychological, and not organically
possible because their existence was denied (Sherwin 147).
Mystifying, exclusionary language helps to
defend its hierarchical structures and discourages challenges. Science accepts
only a narrow sense of reason and knowledge, knowledge of personal experience
is subjective, so it’s unreliable. Knowledge belonging to patients, who are mostly
women, is discredited (Sherwin 147).
Science is far from objective. As an
institution it reflects and supports interests and ideologies of dominant
societal groups. It is NOT a neutral social instrument; it continues the
oppression of women (Sherwin 148).
Doctors cannot claim privilege in decision
making because of scientific knowledge, it’s only one aspect of data required
for decision making. The right treatment for a patient is not simply a
scientific matter. Expertise in science makes doctors qualified to provide
information to people trying to make health related decisions, but it does not
license them to make their decision (Sherwin 148).
Paternalism & Trust?
The third argument is that a doctor’s authority
is essential to healing. A patient’s belief in their doctor does seem to help
them heal (Sherwin 148). I have seen that (and empirical studies have shown)
that the placebo effect (a patient’s belief in a sugar pill will help him), is
known to be powerful physically and psychologically.
This does not mean that the patient must be
kept in the dark or that he should be kept dependent. Much evidence shows that
patients who actively are involved in their care do much better (Sherwin
148-149).
Nursing’s goals are opposite from those of physicians
– our goal is independence. Nurses goals are for patients to take care of
themselves, to be in control with knowledge and confidence.
If patient’s having confidence in their healer
is to work then the relationship must be based on trust. Faith that patients
put in doctors to heal them should not come out of blind trust. Sherwin
discusses a moral test for trust relationships: “they be able to survive
awareness by each party to the relationship of what the other relies on in the first to ensure their continued
trustworthiness or trustingness” (Sherwin 149).
Patients, especially female patients, have
reason to be suspicious about the trust in their relationships with physicians.
If patients sought to learn what their doctors rely on to ensure continued
trust, it is unlikely that using the above definition a trust relationship would
be sustained (Sherwin 149).
Women have different roles and experience with
the health care system than men. Women are the major health care consumers and
are a majority of the workers in heath care; men however, hold the positions of
power. The model is based on a powerful paternalistic authoritarian directing
subordinates in the treatment of (ideally) compliant, passive patients. These
patterns of dominance mirror and reinforce social expectations of men as
authorities and women as servants who follow through, but do not initiate
treatment (Sherwin 149).
Gender imbalance in health care encourages
doctors to accept the social attitudes about women and illness. In medical
literature organic diseases have used male patients as their model and feminine
models for mental diseases and with symptoms that cannot be answered
organically. You can believe men’s symptoms of disease, but women are high
strung. Ads for medications use men with pain relief and women with
tranquilizers. Women are portrayed as weak and in need of calming. Gender is
not the only stereotype used in dominance relations in medicine: race, class,
ethnicity, sexual orientation, age and degrees of disability also affect
whether or not the doctor accepts your report at face value (Sherwin 150).
Historically doctors have used whatever means
was most salient at the time to ensure their monopoly over health care. Before
the late 19th century physicians had to compete with other healers: wise women,
midwives, quacks, sectarians and bonesetters. The 15th and 16th centuries
illustrate the worst medical hostility that was combined with church-based
misogyny. It fostered mass murders of alternative healers (mostly women) under
the guise of witchcraft. During these times in history there was no interest in
caring for women and children, they concentrated on middle-aged and elderly
men. Their sought to maintain dominance by caring for those who were highly
valued in society. The care of women was left to a widespread network of
women’s culture (Sherwin 150). Interesting that we still have an underground
network of women who educate each other about their health (see page 49).
In the latter half of the 19th century competition
was fierce and doctors saw that a large market of their services was women; if
they got this market, they had access to the other family members, so they
focused on women, especially services involved in pregnancy and worked to get
rid of access to other providers. They succeeded in getting a monopoly in
health care and drove other health workers into subservient positions that
required them to practice under the eyes of physicians. They lobbied for
legislation to get control over women’s fertility and cut women off from
abortion and contraceptive services. This control over women’s bodies improved
their economic, social and political positions; the benefits to women are
unclear (Sherwin 151).
By defining what is “normal” and
healthy for women, doctors ensure women’s dependence. It continues today as
evidenced by the new reproductive technologies. Today’s competition is severe
among profit seeking hospitals. One of their strategies has been marketing to
women with women’s health centers. Because women are the medical gatekeepers in
most families, if an institution gets her loyalty, they will thus have access
to the rest of her family – just like they did in the late 19th century
(Sherwin 151). Being the subject of medical attention is not necessarily good
for women. Dangerous and unneeded procedures have been carried out on women at
terrifying rates. More surgical interventions in childbirth has led to
increased mortality rates. There have been excessive numbers of surgeries on
female organs. All women with breast cancer were subjected to radical
mastectomies without scientific evidence that they were needed to increase
survival (Sherwin 151).
A six-year study of communication patterns and
structures of decision making between doctors and female patients, found that
many more hysterectomies were recommended than were actually needed; this
reflects an attitude that if reproduction capacity has ended, then the uterus
is a dangerous organ and is best removed. A quote from a major gynecological
text,
“Menstruation is a nuisance to most women
and if this can be abolished without impairing ovarian function, it would
probably be a blessing not only to the women but to her husband” (Sherwin
152). There has not been a corresponding
trend to remove cancerous testicles or prostate glands from men, as routine
when reproduction is completed, despite their serious health threat (Sherwin
152).
In mental illness, women are treated more
aggressively and frequently than men. Behavior perceived as healthy for adults
is seem as pathological for women. Psychiatrists have found a great deal of
normal female behaviors, lesbianism, political resistance and not wanting
children, as unhealthy. Women who seek support after sustaining injuries and
psychological distress from battering, rape, sexual harassment, incest or
racism are commonly treated with tranquilizers (or worse) to help them adjust
to their situations. Women are twice as likely as men to be prescribed
psychotropic drugs (Sherwin 152).
So, it is clear that when women seek treatment
for conditions unique to women, they definitely risk harm instead of help.
Paternalism encourages patients to trust and not question medical authority; it
should not be accepted as common medical practice (Sherwin 153).
Feminist Views
If particular situations are known to
compromise one’s ability to reason doctors should seek to minimize these
effects. They should help to mitigate the effects of diminished capacity by
fostering a decision-making process sensitive to the patient’s overall
interests. Medicine should be directed at maximizing a patient’s ability to make
reasonable informed decisions. When paternalistic interventions are truly
needed it should come from someone who can be counted on to give back authority
to the patient as soon as possible – usually this person is not the doctor
(Sherwin 154).
Physicians should earn trust – it should not be
assumed. Trust is built through sharing information, particularly the medical
knowledge that might bear on the patient’s expectations and deliberations. In
the medical context, earning trust requires that the physician respect the decision-making
authority of the PATIENT. An open health care process should include the
patient in decision making and is more likely to get results that are in the
best interest of the patient (Sherwin 154).
Most bioethicists recognize that doctors have
technical knowledge essential to decision making, but they lack other kinds of
knowledge needed to make decisions about a particular patient’s needs. They are
not expert to the centrally relevant knowledge of each patient’s distress, values
or coping strategies. Medical training does NOT provide them with knowledge
about the social context in which the patient’s needs for health care arise (Sherwin
154).
Feminists and non-feminist colleagues in
bioethics can agree and insist that physicians tell patients the information
they need to make their own decisions. Most do not need technical terms or
biochemical theories, they need to know what treatment is recommended and why,
what their options are, and the consequences of each that are likely, what
risks involved of treatment and of declining treatment that would likely be
(Sherwin 155).
If physicians were to receive training in
communication skills, they would be better equipped to give patients
information and patients would have the information needed so that paternalism
could be discarded. There is a danger however, that if doctors knew more about
communication skills they would be even better at paternalism because it would
aid them in manipulating patients and thus strengthen paternalism. Feminists
demand an ideological change in doctor-patient relations. Physician’s knowledge
is distorted by their own biased expectations and those of the scientists that
they learn from (Sherwin 155).
Communication involves at least 2 parties.
Ethicists should be concerned with the role of each participant when examining
relationships between patients and doctors. Feminist ethics recommends that we
not only advise physicians about how they should behave but also put priority
on helping patients obtain information they need and to learn how to weigh and
interpret the medical advice they receive (Sherwin 155).
This is what I want to help patients to do. I
have called it helping them with their ethical needs. We have not used the term
“ethical needs” but I am starting it because I see a need to help
patients with taking control over their own “ethics of health care”.
We have long used terms like social needs, sexual needs, biological needs,
spiritual needs, why not ethical needs? Why not help patients say for
themselves what their moral needs are? We may find, if we ask them, answers
that could facilitate changing the system to meet their needs. They may tell us
how we can meet their ethical needs.
In traditional approaches, when sources of
potential physician biases are uncovered, the conclusion is to reject
paternalism and go to autonomy. Many feminists are not comfortable with
autonomy as an alternative. The concept of autonomy carries too many
associations of isolation and independence to capture feminist conceptions of
agency. In its place we could explore more of the relational concepts that
different feminists have purposed, which might support the agency of patients
without abandoning them to their rights (Sherwin 155-156). I agree with Sherwin
that a feminist, relational, contextual, perspective that includes the
patient’s voice would be helpful in empowering patients.
Sherwin discusses “autokoenony” which
stands for “the self in the community”; it captures a sense of being
free from dominance without suggesting self-domination. Autokoenony refers to:
“a self who is both elemental and related, who has a sense of herself
making choices within a context created by community”. (Sherwin 156). An autokoenonous person interacts with others
and makes decisions in consideration of her own place and of others in the
community. In the medical setting it suggests an understanding that patients
exist in a social world, where their ends and activities are defined in
conjunction with others they trust. It’s a more realistic perspective of
patients choosing in the company of others who help shape their lives. When
patients are confronted with difficult decisions, physicians and patients might
include others trusted by the patient to be included in the decision-making
process. When patients are isolated, and have no others that they can trust,
they could be helped to form relationships that could foster their decision
making in an interactive way. Self help groups of patients with a common
condition, for instance, usually provide patients with an opportunity to
explore the complexities of their decisions in a nonhierarchical environment
(Sherwin 156). The type of environment I have in mind.
The ethical question is not autonomy versus
paternalism, it’s a question of how to strengthen the patient’s agency, how to
help her make decisions that will serve her. It requires radical rethinking
(just what I am in the process of doing) of the physician-patient relationship
and development of improved patterns of communication and mutual respect
(Sherwin 156).
Hopefully if patients can come to a place and
talk, get information along with encouragement and support they will then go
back to their physicians and demand control of their health care. We must
demand respect from those in power – they will not GIVE it to us.
How about inventing a practice
“amicalism”, built on a model of friendship? The intention would be
to enlist friends or family in decision making, rather than treating medical
choice like a contest between an isolated patient and a physician. When
patients feel unable to make decisions on their own (or they are incompetent)
they could be helped to communicate with others they trust – who have already
demonstrated a commitment to them as individuals (Sherwin 157). The health information centers could be a
place where the whole family could come to talk about a health care
decision.
Research
Feminists are concerned about how the subject
population is selected and what measures are used to obtain informed consent.
In non-feminist bioethics, the ethical questions center on matters of
participation and consent. Who can be asked to participate? What about subjects
who cannot consent? What limits exist about the degree of risk they will be
exposed to? What is legitimate research? What about the degree of spending
(Sherwin 159)?
Feminist ask: How are topics chosen? Which
issues are investigated and which ignored? Whose interests are served and whose
are ignored? Who controls research conditions? Whom are researchers accountable
to? Recognizing that patterns of oppression extend into medicine, feminists
take a special interest in research done on women. Their study of women’s
health care leads them to question what guidelines determine whether procedures
are experimental or established. They recommend models of the
subject-investigator relationship that differ from conceptions that govern most
research practices (Sherwin 159).
Research & Oppression
The central question is, what constraints
should govern the use of human subjects. In double blind studies neither the
investigator nor the subject knows whether the patient receives the treatment
or the placebo. There is a risk that her condition could get worse either
because she’s not getting the treatment or the treatment itself is dangerous.
The general principle common to ethical debates is the subject must freely choose
to participate. Women constitute a special consideration in research because
women’s oppression consists in the subordination of women’s interests to those
of others – be wary of any proposal to use women’s services for some greater
social good. Women’s relatively powerless role in society and their
disproportionate use of medical interactions makes them especially vulnerable.
Researchers should be required to take special precautions against exploitation
of women. We need ethical guidelines to govern women’s participation in medical
research (Sherwin 161).
Evidence reveals that we should be worried
about research on women. Researchers have always been inclined to use as
subjects those who are less valued in the society: prisoners, elderly,
disabled, institutionalized, and the poor. Women, as an oppressed population,
are considered expendable, making them candidates for risk exposure (Sherwin
161).
A former director of the public health
department in Oak Park, IL, claimed that women were the best guinea pigs; they
take the Pill with no questions asked, they pay for the right to take it and as
experimental animals go, they are the only ones who feed themselves and clean
up after themselves (Mendelsohn 35).
Patriarchy devalues women when they are no
longer able to fulfill their childbearing role; women in post-operative
surgical wards are vulnerable to multiple exploitation. Sherwin relates a case
where researchers, in 1964, at a Jewish Chronic Disease Hospital, used 22
residents without their consent in a cancer study. They deliberately refrained
from telling patients that they were being injected with cancer cells knowing
no one would accept them – the patients were debilitated (600 others from prior
trials had also been used) (Sherwin 162). Sherwin quoted Katz, “for two
years we have been doing the tests routinely on all postoperative patients on
our gynecological service” (Sherwin 163). These post-op patients were
uninformed and non consenting. Bioethicists have debated research on prisoners
and ill patients, but neglect to address what was routinely done to
“healthy” gynecological patients (Sherwin 163).
Oppressed people are in coercive environments
that leave them vulnerable to be exploited in research. Women should not be
subjects of research that will not benefit women. If being female (black,
disabled, poor) is not relevant to a study then don’t use them (Sherwin 165).
Women as Subjects
Most research that affects men and women is
done on men; the results are then used as the norm. Expecting that women will
respond differently than men, they leave women out to avoid
“distorting” the data. We lack adequate information on how to treat
women with heart disease or cancer. We understudy diseases affecting blacks,
disabled, and Native Americans. It is of serious moral concern that doctors do
not have information on diseases in these groups (Sherwin 166).
Data with research done on middle-aged white
men is abundant in medical libraries. (Even research on rats excludes females).
Where medicine like aspirin is concerned, physicians are left to make their
best guess about whether it will help prevent coronary artery disease in women
because no women were included in the studies. (Apparently the fact that heart
disease is the number 1 killer of women means nothing) (Cotton 1049).
The same holds true for drugs like beta
blockers and antidepressants. It holds true despite the fact that over the past
10 years much evidence has surfaced about the importance of how different drugs
effect women, the elderly and racial minorities (Cotton 1049).
The National Institutes of Health (NIH), The
Food And Drug Administration (FDA) and The Pharmaceutical Manufacturers
Association claim that the issue is being looked into, however, no changes have
been noted in research habits (Cotton 1049).
The Congressional Caucus on Women’s Issues has
asked the General Accounting Office in Washington, DC., for proof that the NIH
is including oppressed groups in their studies, as their policy dictates
(Cotton 1049).
A spokesman for the FDA says if rules are too
strict they get in the way of research designs and it leads to drug companies
dropping a study because it’s too expensive. He says rules to include the
elderly are a waste of time because the drug companies know what they need to
do, but they have no figures to illustrate that. A spokesman from the
Pharmaceutical Manufacturers, Lionel Edwards MD, (chair of their Special Populations
Committee) said that studies could be sub grouped to death and they would never
get the new products out (Cotton 1049).
According to Michelle Harrison, MD, assistant
professor of psychiatry at University of Pittsburgh, one thing that seems to
get in the way of researchers using women is their menstrual cycles and
pregnancy. We do however, USE these drugs on those with the confounding factors
(Cotton 1049-1050).
Jean Hamilton, MD, Director of the Institute
for Research on Women’s Health says that we frequently “stumble” onto
information and that information is only the beginning of what we need to
learn. Jerry Avorn, MD, a geriatrician and associate professor of social
medicine at Harvard university Medical School says that the idea that white
males present fewer confounding factors to researchers is made because white
men run the country (Cotton 1050).
The common excuse for excluding women,
teratogenic liability, can only be resolved through legislation. As more and
more women are involved as researchers the menstrual cycle will cease to be a
confounding problem (Cotton 1050).
Anne Willoughby, MD, MPH, chief of the
pediatric, adolescent and maternal AIDS branch at the NIH’s, National Institute
of Child Health and Human Development, says,
“We have to anticipate the barriers and
address them aggressively up front”, (Cotton 1050) referring to the needs
that must be addressed if we are going to use women in research. Needs like
transportation and child care must be taken into consideration if women are to
be involved in research (Cotton 1050).
A New Zealand study in 1966, sought to prove
the assumption that early signs of abnormal cell changes in cervix were
unlikely to lead to cervical cancer. The researcher did not offer regular
treatment to women diagnosed pre-cancerous; they were also denied relevant
information about treatment options. No consent was obtained, but they were
monitored and subjected to repeated invasive exams to establish “natural
history of carcinoma in situ”. Over 20 years, 30 women died of cervical
cancer and a variety of other health problems. The untreated had vastly higher
rates of invasive cancer and death than those treated. Many in the medical
community knew and disapproved of the study, but it wasn’t stopped until women
mounted political pressure to force a public inquiry. Absence of political
pressure in the medical community illustrates their willingness to tolerate
needless death and suffering of women rather than restrict academic freedom of
one of their own (Sherwin 166).
For decades radical amputation was the
treatment for any evidence of cancer or even prospect of cancer in a woman’s
reproductive organs. (Even if they only suspected it might develop). Only
recently have studies been done to evaluate the effect of these
“therapies” (Sherwin 166-167).
Most medical research that has been done on
women has centered on their reproductive functions – why? Much of the research
done on oppressed groups seeks to find differences between oppressed groups and
dominant ones, but little to meet the needs of the oppressed groups. By
centering their efforts on having control of reproductive functions, researchers
reflect a view of women defined in terms of their reproductive function. The
research community and those who fund it thus perpetrate the oppression of
women (Sherwin 167).
The earliest tests on the “Pill” were
done on poor uneducated women in Puerto Rico and Mexico. Drug companies chose
to avoid the limits of human-subject research in the West by going to
underdeveloped nations (Sherwin 168).
Experimental treatments are monitored strictly,
but established treatments are not. Patients think if they are not specifically
asked to be involved in a research study that they are getting established
treatment – this is often wrong. A fine, permeable line separates established
from experimental in women’s health care (Sherwin 168).
Millions of women have used contraceptive
devices and drugs they thought were tested and safe, but thorough testing had
not been done on the Dalkon Shield. The Pill was marketed for 10 years before
federal hearings on safety revealed risks and hazards of long-term use (Sherwin
169).
This failure to distinguish between research
and therapy is found with infertility treatment too. Despite serious side effects
and possible death adequate testing is overlooked before drugs are given as
routine therapy. Fertility clinics all over the world are offering therapies
that are expensive, dangerous, painful, traumatizing, even life threatening and
for the most part unsuccessful; they experimented with techniques without
saying they were researching them, thus leaving them not being subject to
ethical scrutiny. Despite high failure rates with in vitro fertilization, it is
seen as an established therapy. By tolerating the blurring of these boundary lines,
they are limiting woman’s ability to make informed decisions about taking part
in data collection for new means of controlling fertility (Sherwin 169).
Women’s need to control their fertility makes
them especially vulnerable. The contraception and fertility industries are VERY
profitable. Women’s powerless position in society makes it important that we
guard against exploitation from pharmaceutical companies. Patients must be
informed when we don’t know the long-term effects of drugs. The political
implications of research should not be overlooked during ethical review
(Sherwin 170).
Research & Organization
In research nature is objectified and
scientific knowledge pursued so that it can be exploited and controlled. The
knower is distinct from and dominant over what is known (Sherwin 170).
Feminists suggest a new scientific model – close
the gap between the self and research object, by identifying with the
biological material forming an emotional bond. To see what is missed by others
using the standard scientific model, with distance between researcher and
object. Get a feeling for the organism and learn to listen to the material – a
model that connects the knower with the known (Sherwin 171).
Science projects an image of dispassionate
objectivity and a search for truth. Science is an expensive, competitive
institution; researchers do projects that they can obtain funding for. They
need to attract grant money and get results and are inclined to shape research
to objectives of funding sources. Projects are tied to interests of those with
money and power to support the research. Much research is funded by the defense
department with military interests. Much of the research in health care is
funded by drug companies or the biotechnological industry. Even public money
reflects the political clout of special interests. Despite knowledge that
cancer prevention promises to save more lives than treatment, more money is
spent on cure – it will bring more profit to industry and the latter threatens
to reduce profits (Sherwin 171).
Biotechnology promises fame and prestige to
doctors, scientists, and corporations involved and is a product for export.
Sherwin says a doctor with a private in vitro facility in the U.S. could eventually
generate 6 billion dollars a year (Sherwin 172)! This makes prevention of
infertility unprofitable.
Western culture expects and celebrates
technological solutions. Careers and institutional reputations are made on
break throughs, and big profits go to innovators. Many forces lead to there
being a market for high technology. There is little support for less dramatic,
less-rewarding work with prevention and management of disease (Sherwin 172).
Medical research speaks of wars against cancer
and heart disease, but they are not finding ways to avoid the battle. We hear
of the demand for a cure for AIDS, but why not how to avoid or respond to the
secondary infections that AIDS patients usually die from? Research for
technology is readily funded and when successful, readily put into use. No
where in the research phase do, they measure the implications for the new
discoveries in the overall distribution of resources. We now have public
hospitals with tons of technology, but having to close beds because they do not
have money to pay their staff (Sherwin 172).
Technology is expensive and is available only
in developed countries (and perhaps only to the wealthy). Western attention on
technology has led to our abandoning responsibility for the health needs of
under developed countries and the poor at home. Research leads to changes in
health policy, there should be a way to review and anticipate the affects of it
because once available it is irresistible (Sherwin 172).
The first large study on women with AIDS, by
the government sponsored ACTG protocol 076, is to focus on pregnant women of
color. African American and Latino women who have been affected the most by
AIDS would like the right to decide for themselves whether or not to risk being
in the study, but due to a federal requirement the fetuses FATHER must give
approval for the woman to be part of the study. The National Institute of
Allergy and Infectious Diseases claims that local boards can try to find
loopholes, but that the 1975 rule is mandatory (Byron 95). Here the male
government, the male father of the fetus and the male research establishment
combine forces to maintain a women’s control over her own body.
Illness Labels
“one of the most characteristic and
ubiquitous features of the world as experienced by oppressed people is the
double bind—situations in which options are reduced to a very few and all of
them expose one to penalty, censure or deprivation” (Sherwin 179). Medical
authorities have created this for women by characterizing as pathological
various bodily and mental states typical for women. Men have set the norms of
health and illness and have given themselves control over their manipulation.
Their viewing menstruation, pregnancy, menopause, body size, and feminine
behavior as diseases is an integral part of women’s oppression. Defining
ordinary female experiences as pathological justifies treating them. Their wide
scale management is seen as beneficent (Sherwin 179).
Moral critiques of excessive medicalization do
not imply that all menstruation, pregnancy etc are healthy, medical experts
certainly do have therapies to help women (Sherwin 180).
History of Menstruation as Illness
As medicine grew in the mid-nineteenth century,
gynecology evolved into a distinct specialty. The fashion at that time said
that women were disabled during menstruation and the week before and
recommended that they refrain from regular activities at these times.
Scientific evidence claimed that the uterus competed with the brain for energy
and blood, making it necessary for women to refrain from serious mental or
intellectual work – it may harm them. By the end of the nineteenth century
doctors led the crusade to get women out of the universities and the suffrage
movement that brought them into politics (Sherwin 181). With the change in
economic needs came a need for women to work, medical authorities revised their
advice and said it was helpful for women to be very active during menstruation
(Sherwin 182).
Premenstrual Syndrome
In 1931, Robert T. Frank is credited with
labeling the week before menstruation as a sick time for women. He was
concerned about a woman’s ability to work during this time and coined the term
“premenstrual tension”. This was his way of saying just how
pathological he saw this time of the month and wanted women to be excused from
work during this time. This was convenient to the times in that women were
supposed to be giving up their jobs to men because of the Depression and the
war being over. World war II’s need for women in the work force miraculously
brought another change in the prescription for premenstrual women when they
again were needed in the work force (Sherwin 181).
Premenstrual Syndrome (PMS) was recently added
to American Psychiatric Association’s official diagnostic list (Sherwin 180).
Katharina Dalton, a physician who saw herself
as a sufferer from PMS, widely publicized the broad range of symptoms we now
know as PMS. She claimed it to be a hormone deficiency and thought it should be
treated by replacement. She said women can’t work properly at those times, were
more accident prone, and are so crabby that they even make their husbands less
efficient at these times. This was affecting our economy with the number of
lost work days and it made PMS a “public” and a “private”
threat (Sherwin 184).
There are at least 150 symptoms related to PMS
without medical agreement on which should be included, about etiology or about
treatment, yet it is seen as a real illness worthy of medical intervention.
(The medical community does widely reject Dalton’s suggestion of hormone
therapy) (Sherwin 184).
In the late 1970’s, coincidentally when
feminism showed its face again, women went back to the work force en mass.
Women are now demonstrating their abilities in fields previously thought of as
only male allowing menstruation to be seen as a real liability for women.
Doctors gladly offer evidence to maintain the claim that menstruation is an
illness that gets in women’s way of their being able to compete. Males again
use it as a weapon against us being equal (Sherwin 184).
Sherwin quotes Zita in her summarization of the
medical perspective on PMS as a disease, “the codification of symptoms
results in the morbidification of a sex difference which renders all women
inherently disadvantaged in a man’s world”. (Sherwin 185). So, what ends
up happening is that PMS functions politically in justifying and making sense
of women’s economic and politically oppressed status (Sherwin 185).
PMS
Some women find positive validation with the
labeling of PMS because in the past their symptoms had been trivialized. Many
find relief offered in the women’s self-help press, others seek medical
intervention. The fact that this labeling has helped some women is apparent,
but feminists are ambivalent about it (Sherwin 197).
Some of the symptoms of PMS are behavioral.
These behavioral symptoms don’t fit the norm of female passivity. They are less
able to tolerate discipline, and monotony in their lives. They become
irritable, depressed and angry at constraints in their lives. Perhaps these
details in their lives that women hate are due to their subordinate status.
Feminists would not see this anger as negative. PMS may be a social
manifestation of rage about oppression (Sherwin 184).
Amenorrhea as Illness
Now that we know that we are diseased if we menstruate,
we must also face the fact that if we don’t menstruate, we are also seen as
“ill”. Some of the symptoms of PMS have been discovered in females
too young or too old to menstruate and women who have had hysterectomies have
had the worst symptoms. Some feminist theorists think that cyclicity itself is
perceived as a problem in Western culture (Sherwin 185).
Menstruation is seen as a problematic medical
event. Sherwin discusses Martin who documented the ways that textbooks make
negative references to menopause; the ovaries become “unresponsive”
and start to “regress”. The hypothalamus gives inappropriate
commands. Other words used in reference to female organs at this time of life
are: faltering, withering and senile (Sherwin 185).
The World Health Organization recently defined
menopause as an “estrogen deficiency disease” and thus requires major
life changes for the woman. Many physicians prescribe hormone replacement. They
claim that it will prevent osteoporosis, heart disease and the vaginal drying
that occurs after menopause (Sherwin 186).
There are serious side effects involved with
artificial hormone replacement. On Prime Time Live January 28, 1993,
Diane Sawyer asked Bernadine Healy whether women should use hormone replacement
after menopause. She said that we can’t tell whether they should or not,
studies show that it will benefit their bones and heart, but there is worrisome
information about them increasing a woman’s risk for cancer. She regrets and
feels that it is unacceptable that we don’t have the answer for that. She said
that we should and will do research on how to prevent heart and bone disease in
women. The Women’s Health Initiative has appropriated $625,000 to study the
effects of hormone replacement and vitamins on port-menopausal women (Healy, Prime
Time Live).
I think that prevention is more cost effective
economically, and in the emotional toll it takes on patients.
In a discussion of feminist ethics with Carol
Krohm MD, she told me that what really infuriated her was she recently heard 2
male obstetrical\gynecological doctors talking about how they are going to
start adding male hormones (androgens\testosterone) to female hormones given to
post-menopausal women. They said there was a need to give it to them because of
their complaints of decreased libido. Dr. Krohm said that she doesn’t believe
that, she says the problem is probably the opposite – it’s the men who can’t
get it up at that age who are the problem. She says if the women are not
interested in sex after menopause it’s probably because they are so angry at
having to put up with the men all those years (Krohm 92).
Mendelsohn says that women have been convinced
that they need an annual Pap smear which he says is not necessary. The test
results are frequently inaccurate and their main purpose is to keep
gynecologists rich and busy. He says that if the results show the slightest
change the women will be advised to have a hysterectomy. (In case there are any
bad cells hanging around her uterus). While they’re in there they will also
remove her tubes and ovaries, then she will need hormone replacement which will
then possibly lead to her getting breast cancer. To say nothing of the pursuant
sexual changes that may lead her to a psychiatrist. The surgeon who removes her
breast will for sure not tell her that the hormones she took for 15 years and
kept her gynecologist rich off her having to return for prescription renewals,
caused her to get the breast cancer (Mendelsohn 3).
Pregnancy as Illness
Women also stop menstruating with pregnancy;
here is another women’s disease for medical science to oversee. Pregnancy is
defined in medicine as a state requiring intense monitoring and almost constant
preparation for radical intervention. Women are ordered to modify their
lifestyle, report for regular checkups, be subject to potentially hazardous
tests and above all else get themselves to the hospital before the birth so
that doctors can control their birth. This encourages dependency on the medical
system and gets in the way of women thinking for themselves how they want their
pregnancies and birth to happen. If they even question not going along with the
system they are seen as irresponsible (Sherwin 186).
The American College of Obstetrics and
Gynecology says that they are to be credited with the decline in infant and
maternal deaths during the last 100 years, but they leave out the fact that
most of the decline happened at a time when babies were delivered at home
without medical intrusion (Mendelsohn 6).
Two and a half million women in the United
States had Dalkon Shields inserted between January 1971 and 1974, before they
were taken off the market by The Food and Drug Administration. These
intrauterine devices (IUD) had been used despite the fact they had not been
tested properly and caused harmful side effects soon after they went on the
market. Approximately 1,100,000 women have since had acute pelvic infections,
1/5 of them were left sterile, and seventeen have died from the Dalkon Shield.
Physicians were not notified by A.H.Robins (the manufacturer) until September
1980 to remove the IUDs from any patients who still had them in (due to large
amounts of publicity about the problem). This after $55 million had been paid
out by their insurance company to cover damages from 600 court actions and 300
pending claims (Mendelsohn 35).
During the 1940’s and 1970’s DES
(diethylstilbestrol, a synthetic female hormone) was used to prevent
miscarriages. It was used without real knowledge of whether or not it actually
prevented miscarriages or what the potential side effects might be. These facts
did not get in the way of doctors prescribing the drug or the drug companies
from marketing it (Mendelsohn 35,36).
After a while the University of Chicago did do
research on DES using 2,000 healthy pregnant women who were told the drug was a
vitamin; they were not told that they were being used like rats to test the
drugs effectiveness. The researchers did learn what they wanted and that was
that DES did not prevent miscarriages. The drug was still prescribed
(Mendelsohn 36).
It only took until 1972 for the side effects to
start showing up: breast cancer in the mothers who took it, vaginal cancer to
their daughters and genital malformations in their sons. Most of the women who
took DES from the experimenters were sought out to inform them of its dangers,
but the medical system did not have a way to seek out and notify the children
of all these women who were at risk. Mendelsohn feels that every doctor who
gave out DES is morally obligated to alert their patients and children who are
risk; he doubts that with the threat of law suits that many would do so
(Mendelsohn 36).
I remember well an experience I had with DES. I
worked as an LPN (licensed practical nurse) in the late 60’s in an obstetrical
unit. I recall looking up the drug DES before giving it to a pregnant patient
as the doctor prescribed. I had been severely warned against giving any
medication to a pregnant woman, so since I had not even heard of the drug, I
wanted to know what I was giving. I remember the absolute uproar it caused when
I refused to give the pill because the Physician’s Desk Reference said
it could cause fetal damage if given to pregnant women. I was the criminal at that time. I dared to question one of the “GOD Boys”. I dared to use my head and to care
about and use the knowledge I had gained simply by taking the initiative to
learn about the drug before giving it. Oh, I remember so well, I feel the same
rage I did then, only now I like myself for what I did. Now I’m glad I got in
so much trouble. I’m glad I had a big mouth. I actually used to feel that
something was wrong with me that made me speak up about things like that.
A major turning point in childbirth control was
when doctors placed women flat on their backs with their knees raised on a high
table to give birth. What this did was disallow nature to assist the woman in
giving birth; contractions combined with gravity were taken away in lieu of the
doctor’s control and interventions. This simple position change made women
actually NEED assistance to give birth. It has made giving birth very
difficult, risky, painful and gave doctors rationales to AID women with their
once natural process. (Anyone who has ever had to try to use a bedpan to have a
bowel movement laying flat in bed will understand how unnatural this position
is for evacuating from down below).
Studies had been done in the 1930’s that proved
that intra-abdominal pressure was the strongest in the sitting position; there
has never been a study to scientifically justify laying women down to give birth.
It was done for the doctor’s convenience. The trauma created to the birth
process by using this position makes birth a pathological event (she has to go against
gravity and the upward curve of the pelvis) and gives obstetricians a reason to
exist (Mendelsohn 152,153).
Mendelsohn says that the flat maternal position
requires that an episiotomy be done, the need for surgery then justifies the
need for the position to do the surgery easier. When mothers give birth in
natural positions, the already remarkably flexible perineum becomes even more
flexible with body changes that occurs during labor – women don’t need
episiotomies! (This is when the vagina is cut before birth supposedly to
prevent tearing.) (Mendelsohn 177).
Childers reported that it has recently been
shown that episiotomies are not medically necessary, despite the fact that they
are done on 70-80% of vaginal deliveries in this country! (Childers 92).
I have often wondered why nature would not have
made it feasible for a woman’s body to let out a baby without a man cutting
into her vaginal tissue. I wonder what the incidence of tears would be if they
dared to allow nature to take its course. It seems similar to removing
pre-cancerous organs or removing things to prevent cancer from coming at all or
coming back.
Mendelsohn is my hero in speaking for the
desperate need to develop a feminist ethics of health care.
Pap Smears
Pap smears, believe it or not, have never been
tested to see if they are effective or not. But that doesn’t stop physicians
from using them to gain access to patients once a year. If you ask a doctor
about the effectiveness of the test, they will tell you how the rate of
cervical cancer is down – but the rates were down BEFORE Pap smears were
around. A recent study, at Yale University Medical School, showed that Pap
smears were inaccurate, had never been involved in trials and that there was no
evidence that it had any effect on the death rate from cervical cancer
(Mendelsohn 41,42).
Mammograms
Mendelsohn relates a true story of a friend’s
wife whose mammogram showed a tumor. A frozen section (fast) biopsy was done
which came back positive; she had her breast removed. The post-operative
pathology report (which is much more accurate, but takes a couple days) showed
no evidence of cancer (Mendelsohn 43).
I am also aware of this happening to women.
Women were asked to sign consents for mastectomies at the same time they signed
for their biopsies. This is truly ridiculous because the very reason biopsies
are done is to learn whether or not there is cancer. Frozen section biopsies
(the ones done immediately after tissues removal) are known to be less reliable
than full pathology reports. The fact that medicine did not mandate full
pathology reports before doing procedures as devastating as mastectomies is an
example of how medicine has devalued women – to put it mildly!
Necessary Drugs & Women?
In 1979 alone 160 million prescriptions for
tranquilizers, sedatives and stimulants were written. (Only 10% of these were
written by the specialists trained in their effects, psychiatrists). A federal
report showed that 80% of amphetamines, 60% of mind-altering drugs and 71% of
antidepressants were prescribed for women. Women with the same symptoms as men,
were prescribed twice the amount of drugs as men (Mendelsohn 60).
Congresswoman Cardis Collins of Illinois is the
head of the congressional task force on women and drugs. She says we are
accustomed to thinking of drug abuse in terms of male heroin or cocaine
addicts, but there are 2 million women addicted to prescription drugs. Doctors
frequently tell male patient to use physical exercise to deal with their
problems, a woman with the same symptoms is advised to take Valium. Roche
Laboratories profits a half a million dollars a year in Valium. Valium leads to
50,000 emergency room visits a year, 90% of these visits are women (Mendelsohn
61).
I recall a patient I took care of in an intensive
care unit who was there after a suicide attempt. She said it was her eighth
attempt in the past 2 years. I reviewed all the medications she was prescribed
by her psychiatrist and found 3 of them had side effects that led depressed
patients to attempt suicide! I asked the patient if she was aware of the side
effects of the medications she was taking. She said no, but showed no
indication of “getting” what I was saying. She “got” it on
an intellectual level, but could not see that her doctor might have had any
responsibility in her frequents suicide attempts. She was being treated for depression.
When she told me about her life, I thought it was horribly depressing as she
was being abused by her ex-husband, her sons, and, in my opinion, her
psychiatrist – she sure had reason to be depressed to me. When giving report to
the next nurse I told her about the drugs and that I had been unable to get a
hold of the doctor to notify him of the side effects that I had read about (I
even wrote out the side effects and the page numbers in the drug book) this
patient’s drugs. This nurse thought I was some kind of freak – we don’t tell
doctors about side effects – they’re supposed to know – they’re the doctors –
they prescribe them. Why was I as a nurse taught to NEVER give a drug unless I
knew about it? Why was I taught that if I gave a drug that I knew would be
harmful I should tell the doctor and refuse to give it? It just doesn’t seem to
work that way in real practice.
Surgery
Doctors who are paid a salary do 50-100% less
surgery than those whose income depends upon the number of procedures they
perform. In 1980 Blue Cross and Blue Shield stopped paying for 28 procedures
that they thought were not helpful to patients. In order to do these surgeries
doctors would have to work hard to justify them to patients and interestingly a
75% drop occurred among these procedures (Mendelsohn 81).
Mendelsohn illustrates very well the risk we
face under a surgeon’s knife. In 1974, 15,000 people died as a result of
knives. Three thousand of them were murdered and 12,000 were from surgeons. At
the time of Mendelsohn’s writing he predicted that if present rates continued,
“one of every two women in the country will part with her uterus before
she reaches the age of 65” (Mendelsohn 97).
Dr. Niles Newton, professor of psychiatry at
Northwestern University did a study on the consequence of hysterectomy that may
not be of much importance to male gynecologists, that is decreased libido. She
found that 60% of women experienced suppression of their sex drive after
removal of the uterus and ovaries. (Male gynecologists had told women it would
enhance their sex life because they would not have to worry about pregnancy)
(Mendelsohn 102).
Breast Cancer
Dr. Halsted’s radical mastectomy was developed
in 1882 when most breast cancers were not treated until very late stages. Studies
have illustrated that 1/4 of all married women experience depression so severe
that they contemplate suicide after mastectomy. Another 25% describe
deteriorated sex lives. More than half have phantom breast pain (they feel pain
in the breast that is gone). Psychologists who see these patients and have
studied these patients blame the symptoms on lack of emotional support from
doctors who did the operations and the husbands with whom they live (Mendelsohn
111,112).
It only took 90 years to have controlled
studies done on alternative treatments. (Other studies had already shown that
the Halsted did not have a better survival rate than less devastating
treatments, but the Halsted was still used)! A 1970 study finally showed that 3
different treatments, Halsted radical, simple mastectomy and simple mastectomy
with radiation were exactly the same in respect to reoccurrence of cancer
(Mendelsohn 112).
The Pill & The IUD
The FDA approved the birth control Pill in
1960, but that approval was based on some despicable research. One hundred and thirty-two
Puerto Rican woman took the Pill for a year or more, “five of them died
during the study, and no effort was even made to find out why” (Mendelsohn
119)! This was some of the scientific evidence that the FDA used to approve the
Pill, endangering 50 million women. Despite 20 years of use it has not been
proved to be safe for women. In fact, 100 studies have linked the Pill with
over fifty side effects. And yet, the FDA then said, “there is no
conclusive scientific evidence that oral contraceptives are not safe for human
use” (Mendelsohn 120).
For some women adverse effects show up right
away, but for others they may not show up for 20 years. Some of the risks are:
cancer of the cervix, uterus, breast and liver; In addition, the pill has been
linked to heart attacks, strokes, diabetes, gall bladder problems, high blood
pressure, depression, pulmonary embolism, vaginal infections, hair loss, growth
of hair on the face, and diabetes. One also may learn that when one goes off
the Pill and try to get pregnant, one is sterile. The side effects of women NOT
using the Pill faced by the FDA and the drug manufacturers are LOST PROFITS; to
them the end, population control, justifies the means (Mendelsohn 121).
Mendelsohn quoted Dr. J. Robert Willson, of the
University of Michigan School of Medicine, at an International Conference held
by the Population Council, they were discussing infections that IUD’s might
cause: “perhaps the individual patient is expendable in the general scheme
of things, particularly if the infection she acquires is sterilizing but not
lethal” (Mendelsohn 126). What kind of medical ethics allows doctors to
view their patients as expendable along the road to achieving social goals?
(Mendelsohn 126,127).
Only 8.8% of female staff members of Planned
Parenthood took the Pill compared to 70% of their clients; they knew about the
harmful effects but their clients did not (Mendelsohn 129).
Eating Patterns as Illness
Our culture is fixated on the shape of women’s
bodies; culture demands women to be attractive and or fat free. In addition to
cultural pressure to be thin, women are also pressured by medicine telling them
that it is unhealthy to be overweight. Ninety five percent of people in
weight-reduction are women and 75% of American women perceive that they are
over weight. Women are in addition, blamed for their lack of control in getting
their weight down (Sherwin 188).
When women show that they cannot control their
weight medical science is there to receive payment for stomach stapling,
enforced dieting, mouth wiring, medications to decrease appetite, surgical
removal of fat and even removing parts of their stomach or intestines (Sherwin
188).
Empirical evidence illustrates that weight
charts telling women how much they should weigh according to their height are
very low. They even show that women are healthier with a few extra pounds on
them (10-15 pounds above charts). Research has not shown women to exhibit poor
health with extra weight; research showing correlations between obesity, heart
and diabetes were done with men and even more specifically showed the excess
weight that caused harm was around the waist, not around the whole body, the
way women carry excess weight (Sherwin 188).
The very advice given to women by medicine – to
diet – can actually endanger their health. Dieting is rarely effective. Ninety
five percent of dieters gain back the weight plus a few more pounds, and
fluctuations in weight are harder on the body than a steady weight above the
weight charts (Sherwin 188).
Medical science also labels a person
“ill” if they don’t eat. Eating disorders such as anorexia nervosa
and bulimia leave women easy prey to hospitalization and psychiatric treatment.
They are an example of women taking cultural norms of what is required to be
feminine to the ultimate. Whether you eat too much or too little you are
subject to medicine’s interventions. Could it be that the norms for health
could be off, and not women? If so, many women have eating problems then it may
be cultural in origin and medical control may not be the best solution (Sherwin
189).
Cosmetic Surgery
Kathryn Morgan displayed a page of knives, scissors,
needles, and sutures used in cosmetic surgery in her paper, “Women and The
Knife: Cosmetic Surgery and the Colonization of Women’s Bodies”. She
suggested that her readers look at them carefully, for a long time and to
imagine them cutting into your skin (Morgan 26). I did.
As a nurse, my first glance simply revealed
surgical instruments – no big deal. Then I looked at them with care for a long
time, and imagined them being used on me, as Morgan suggested. I then looked at
them as a feminist; I then saw them as mutilating, controlling devices used by
patriarchy to manipulate women, to make women fit the image of beauty as
defined by men, especially white men. (Not to mention the enormous profit they
make from assisting us to look good for men).
This is another example of the medical system defining not only what is
normal, or pathological, but outward appearance. What aspect of medical
training certifies them to evaluate appearance?
One of the reasons Morgan gives for writing
about the topic of cosmetic surgery is that she says it is or has been silenced
in the fields of mainstream bioethics and virtually no discussion, feminist or
otherwise, of the issues that may be present in this area. She thinks we, as
feminists, need to ask, why women reduce themselves to potentialities (to fit
the heterosexual image) as women. An enormous and growing demand exists for
cosmetic surgery. Women are willing to sacrifice other parts of their lives for
reconstructed bodies. Why, when the risks are so great? Risks such as:
bleeding, infection, embolism, unsightly scar formation, skin loss, blindness,
disability, pulmonary edema, facial nerve injury, and even death (Morgan 28).
As a feminist, and as a health professional, I
feel that our silence makes us complicit in enlarging the scope of avenues to
patriarchal power. Women invest years of
savings in the cosmetic surgery industry to “fix” natural flaws
through dangerous and painful operations to make their bodies fit the norms of
the fashion editors (Morgan 28).
Morgan also sees this topic as a part of the
technologizing of women’s bodies in Western culture. We are seeing cosmetic
surgery evolve to the point of being viewed as normal. This changing perception
may lead to those who don’t “elect” cosmetic surgery will be seen as
deviant (Morgan 28).
We are all witness to the controversy about silicone
breast implants. Over one million women have had these implants. Two recent
studies show that they block x-rays and cast a shadow over surrounding tissue,
making mammograms very difficult to interpret. There also appears to be a
higher incidence of cancer in those with implants (Morgan 29).
I personally knew a woman who had implants
done, she was my next-door neighbor for many years. I had seriously wondered
about her sanity in doing so because she chose to do it when her second child
was 9 months old. I knew how challenging it was to change the diaper of and
dress a 9-month-old. She was restricted from using her arms to lift or to do
much of anything for 6-8 weeks after the surgery. (She did have her mother
close by to assist). I remember telling her I could not understand her choice
to have it done in the first place, but to have it done with her child that age
I really didn’t understand. I told her I did however, realize that her reasons
must be quite profound and vital to her very existence. Indeed, her decision
came from her desperate desire to obtain her husband’s love. Despite my
realizing that it must have been an act of desperation, I still needed to hear
it from her. I still develop “wet” eyes when I think about what women
will do to obtain acceptance and love.
Morgan says she is shocked at the extent to
which patients and cosmetic surgeons are committed to what she sees as
“one of the deepest of original philosophical sins, the choice of the
apparent over the real” (Morgan 28). Technologically created appearances
become what is perceived as the real; youthfulness over the reality of age
(Morgan 28).
In 1990, the most popular cosmetic surgery was
liposuction; fat cells are vacuumed from beneath the skin never to return. At
least 12 deaths have resulted from hemorrhages or embolisms. Sixty to seventy
percent of cosmetic surgery patients are female (Morgan 29).
The relationship between the means and the ends
are unilinear, but with the new technologies it has become circular; they present
new possible ends. New objectives are added to the possibility of what one
might desire. The role of technology has become transcendence, control,
transformation, exploitation and destruction. The object of the technology is
viewed as inferior; the higher purpose becomes to “fix” with the
technology that justifies its existence (Morgan 30).
For most women, success is seen through
interlocking patterns of compulsions: compulsory attractiveness, motherhood,
and. Their attractiveness is determined my the tastes of men; a woman’s
eroticism not dwelling on the penis is seen as either nonexistent, or
pathological. Our reproductive services are to particular men or to male
dominated institutions (Morgan 32).
Most women in Western societies are socialized
to accept the knives of technology. Those knives can be for healing purposes:
saving the life of a baby from uterine distress, removing cancerous growths
that threaten our breasts; they can straighten our spines, or can give function
back to arthritic fingers. There are, however, other knives that perform
episiotomies and other types of genital mutilation, cut into our bodies to
remove ovaries and thus our “deviant tendencies”, some that amputate
our breasts unnecessarily in the name of prophylaxis or simply in cases where
less drastic measures would have sufficed, some get rid of our uteruses when we
are beyond child bearing years or when we are of an undesirable color, and some
knives that do unnecessary cesarean sections so the doctor can be on his way.
Morgan admits to being afraid of the knives of plastic surgery, they manipulate
our bodies to please the patriarchal, white supremacist culture (Morgan 32).
Isn’t it interesting that another word for
cosmetic surgery is plastic surgery. The “plastic” certainly is more
correctly descriptive to the images involved. Even the word augmentation
is revealing.
Women have historically been socialized to used
their beauty as power. A quote from Mary Wollstonecraft (1792),
“Taught from infancy that beauty is a
woman’s scepter, the mind shapes itself to the body and roaming round its gilt
cage, only seeks to adorn its prison” (Morgan 34). Are women today making
free choices to have cosmetic surgery or are they too simply adorning their
prisons (Morgan 34).
The power that beauty yields is heterosexual
affiliation not equally accessible to the who don’t fit the image of beauty
patriarchy defines: the plain, ugly, old or unable to reproduce. The voices of
women who seek cosmetic surgery are compelling. The youthful appearance they
gain gives them a sense of identity that they did decide to acquire, to a
certain extent. It enhances her status socially and economically, as it will
better her potential for affiliation with heterosexual white men. Her pursuit of
beauty brings her an approval that fits society’s values and thus increases her
self esteem. The people she meets in the process of acquiring cosmetic surgery
may treat her body in a caring way, this may be something lacking in her life.
The accumulative results of the pursuit of beauty via transformation, are
associated with self-fulfillment, self creation, self transcendence, and being
cared for. While the power offered through acquiring beauty can boost a woman’s
self image, it also gets her stuck in a mire of interrelated contradictions
(Morgan 34,35).
Some of the reasons women seek the expertise of
plastic surgeons are to obtain glamorous breasts like the movie stars, to reduce
their noses (often Jewish women), to Westernize eyes (Asian women), and to
bleach dark skin. The results they hope to gain are more than just beauty; they
are trying to mold themselves to fit to a white, Anglo-Saxon, Western image, to
better function in a racist and anti-Semitic society. We might initially say
that they have a choice, but actually they are seeking to conform. The
appreciation women may gain from men in their newly acquired femininity is
actually intrusive when it is obtained through incisions, sutures, staples and
scars. Morgan identifies three paradoxes that choice involves:
1.
What simulates choice may actually be conformity at a deeper level (Morgan
35,36).
Who is really exercising the power involved in
cosmetic surgery? The colonizing power comes from fathers, brothers, male
friends and lovers and the cosmetic surgeons who offer their knives to fix a
woman’s deformities. The power can even be present from within the woman
herself, clothed in a diffuse manner. Women who are involved in
self-surveillance behaviors like fixing their make-up all the time, or
monitoring everything they eat, are maintaining obedience to the patriarchal
powers that be (Morgan 37).
2.
The men in society that women transform themselves for are male-supremacist,
heterosexist, ageist, ableist, racist, anti-Semitic and classist (Morgan 38).
Health
insurance policies do not cover elective cosmetic surgery, so women who want it
must do so at significant cost financially and in terms of lengthy
post-operative pain (Morgan 38).
3.
The technological imperative to be beautiful and the pathological inversion of
what is normal convinces more women every day to have cosmetic surgery (Morgan
41).
Although
admittedly not likely to ever be achieved, Morgan suggests that if women
collectively chose to exercise their power, they could refuse cosmetic surgery
and drastically affect the status of the market. This might also have the
positive effect of leading surgeons back to healing again. Morgan suggests that
we should not turn away from women who chose to have cosmetic surgery; this
decision may be one of the only decision powers she may have in her life
(Morgan 42).
Plastic surgeons rationalize that silicone
breast implants are a matter of a woman’s free choice. We should think
seriously about trusting companies that stand to profit $300 million dollars by
going along with women’s “choices”. Anyone who listens to the
afternoon news has probably heard that Dow Corning Wright was suppressing
negative data about the silicone gel filled implants. Doctors don’t follow
their patients to know about adverse effects and their medical society doesn’t
demand a registry for patients to facilitate keeping tract of women and their
adverse effects.
Applications of Concepts – Health & Illness
What medical science labels sick is taken as
God’s solemn truth. The labeling of a condition to be a disease has enormous
political and social implications. This is especially true with diseases
associated with behavior judged socially unacceptable like alcoholism, drug
addiction, mental illness and homosexuality (Sherwin 190).
Having a physical or mental disease can get in
the way of obtaining equal opportunity. The way the definitions of health and
illness are used shape social roles and set boundaries for medical authority;
they also describe boundaries of those labeled as ill. If ill, you may be
excused from some responsibility and get special treatment. Or they may be easy
prey to stigmatization, paternalism and be judged unqualified for certain
activities. Our society has given doctors a free hand in assigning powerful
labels and the power to “fix” what they label as ill (Sherwin 190).
The medical model of health is tied in with
value judgments. Sherwin quotes Englehart, in his book The Foundations of
Bioethics, “Medicine
medicalizes reality. It creates a world. It translates sets of problems into
its own terms. Medicine molds the ways in which the world of experience takes
shape; its conditions reality for us” (Sherwin 191).
This reality is then reinforced by being
considered socially acceptable; thus, the reality they create is socially
dominating. The very defining of a problem as medical creates expectations and
influences a person’s future – it changes our very social relations. Hidden
policy and value judgments can also shape the “medical facts.”
Doctors place far too much emphasis on laboratory theory and their clinical
world of symptoms and not nearly enough on the expressed experiential data
offered by patients about what they are experiencing (Sherwin 191).
Feminist Views – The Health Illness Debate
Feminists fear medicine having authority in
social and emotional spheres since their training does not give them expertise
in these fields. Medical experts, coming from their homogenous class
background, should not have authority to make decisions about lifestyle
choices. Most feminists support a holistic attitude toward health; social ills
are surely associated with poverty, oppression, ignorance and stress. Doctors,
speaking from personal places that are not impoverished, non-oppressed, and certainly
not ignorant should not be making judgments of those whose lives are affected
by these social conditions. Medicine’s values and authority should not serve as
filters for attempts to fulfill social needs (Sherwin 193).
Feminists think that decisions about what is
illness as far as women’s health should be made among the women’s community,
not within the very society that oppresses us. Medicine’s ascribing illnesses
to oppressed groups may actually be a sign of or an effect of the group’s
oppression; it may even serve to perpetuate their oppression. Labeling of
illnesses of those within oppressed groups has enormous political
ramifications. They may as a result face stigmatization, being seen as passive
and thought of as less than competent (Sherwin 195).
The medicalization of menstruation, pregnancy,
and menopause, assumes that these ordinary events in the lives of women are not
valued – they have to be “fixed.” When body parts are labeled as
diseased they become subject to the control of medicine; women themselves may
thus feel an alienation from these body parts. Some important aspects of
women’s oppression are the fact that their bodies are objectified and alienated
in the process (Sherwin 196).
Medical objectification of our bodies in a sexist
society reduces those bodies to sexual or reproductive functions under
patriarchal rule (Sherwin 198-199).
Sherwin suggests that we only label the
atypical menstrual changes that are harmful to women as diseased. To properly
label what menstrual symptoms suggest disease we must first truly understand
what is normal menstruation which has not been fully explored (Sherwin 199).
If we accept a medical model of PMS as a
disease that affects 95% of women, we are accepting a sex difference that
places us at a disadvantage societally. It serves to maintain our bodies under
the authority of medicine (Sherwin 200).
We must keep in mind who gains from PMS being
viewed as a disease; drug companies and medical specialists stand to profit,
while we are subject to them and maintain our oppression (Sherwin 200).
The cyclic changes women experience must be
perceived as normal; by rejecting the norm of PMS as a medical problem we gain
some control over our bodies, lives, and the way society views us (Sherwin
200).
Illness and Oppression
A person’s health care needs usually vary
inversely with their power and economic status. Poverty has a profound affect
on a person’s health. One may not have adequate nutrition, shelter, clothes,
heat, sanitary conditions, or clean water. Those living in poverty are also
more likely to work at a job that presents health risks, are less likely to
have health insurance and are more likely to suffer from a mental illness and
be addicted to drugs or alcohol. Without money for health care one may let an
illness go to an advanced stage, thus compromising recovery potential (Sherwin
222).
Those more likely to be poor are a societies
oppressed segments: women, children and other minorities. Oppression itself
causes illness due being exposed to high stress levels which leads to many
serious illnesses. The very factors that cause a person to be oppressed
societally also affect his/her treatment in the medical domain (Sherwin
222-223).
Serious or chronic illness may lead to poverty
from fear and discrimination; the chronically ill then also face class
oppression. Bioethicists have an enormous responsibility to address to
connections of oppression and illness and to modify these connections. If
ethicists don’t consider oppression’s role in destroying health they become
complicit in maintaining the oppression (Sherwin 223).
Patients in Oppressed Groups
Women consume much more health care than men.
(Seven times more according to Mendelsohn 1). Sherwin discusses a study that
was presented to the American Medical Association which revealed gender
disparities in clinical decision making. Despite the fact that women are likely
to have more medical procedures done than men with the same symptoms, they have
much less access to major interventions. Women are 30% less likely to get a
kidney transplant; 50% as likely to receive tests for lung cancer; and only 10%
as likely to receive cardiac catheterization than men. Other than the
biological differences between the patients, nothing justifies the treatment
imbalances other than gender bias. Cardiovascular disease is the leading cause
of death in women in the U.S., but all the research has been done on men
(Sherwin 223).
“If a man comes in with chest pain, we
instantly worry about organic heart disease. A woman comes in with chest
pain, Hmm…Well, what is she upset
about” (Healy, Prime Time Live)?
Heart disease kills 20% more women than men. One major prevention study
not only didn’t include women, but it called the study “Mr.
Fit”. When researchers studied the
effects of estrogen on preventing heart disease, it failed to show that
estrogen would prevent heart disease, but the trouble was they did the study on
MEN (Healy, Prime Time Live)!
Another study found that when women were treated,
they were subject to excessive testing, surgery and drugs. Most women seeking
fertility control from professionals are placed on the birth control pill,
interestingly, the majority of these health professionals or their spouses used
barrier methods with less risks (Sherwin 224).
Doctors are educated to view women as anxious,
deviant, unintelligent and not to take their complaints seriously. Research
studies have shown doctors to be condescending to women, withhold information
because they don’t think they can understand (Sherwin 224-225).
“the darker a woman’s skin and/or the
lower her place on the economic scale, the poorer the care and efforts at
explanation she received” (Sherwin 225).
The reasons for lack of safe, effective birth
control, abortion and prenatal care are not just economic, but are even more
political. Black women are four times more likely than whites to die in
childbirth, three times more likely to have their newborns die, are twice as
likely to die from hypertensive cardiovascular disease, have three times the
rate of high blood pressure and lupus and are more likely to die of breast
cancer even though they have lower incidence, are twelve times more likely to
get AIDS and four times more likely to die of homicide (Sherwin 226). Many of the
working poor do not qualify for Medicaid; even those who do qualify face
doctors and hospitals who will refuse them. A 1985 study revealed that four out
of ten obstetrical physicians refused to treat Medicaid patients (Sherwin 226).
Most affluent women will find nutritional
guidance to assist them in loosing weight in their neighborhoods; few women on
welfare have access to information on how to stretch their welfare dollars to
get the most nutrition possible. When women are abused, they get patched up in
an emergency room, and if a space is available may be referred to a shelter
temporarily. There are not usually services available to assist the abuser in
finding alternative methods of treating his spouse. Women then end up back with
the abuser, showing up at the emergency room with more serious injuries, while
their children are being given models of how people treat one another which
they will then carry on to their own families (Sherwin 227).
Justice is often raised as a principle in
bioethics literature; the main moral concern, however, is access. But even in
Canada where universal health insurance exists, poor women still don’t have
access because they lack money for transportation to get to the health
facility. The fact is that some women are at risk for violence, developing
addictions, and malnutrition and this affects their ability to care for their
health needs. They are at risk because of our social system that allows one
group to oppress others. Bioethics must address the needs of oppressed people
(Sherwin 227-228).
Health Care’s Organization
The medical establishment is set up with the
same stratification systems as society in general. So in addition to reflecting
the same biases as society, the medical system also serves to maintain (Sherwin
228).
Women do most of the work in the medical
system, but are not involved in policy making. They are the ones who provide
home health, take care of their own families, (both of which are not for pay,
so they go unrecorded and are not reflected in health care statistics), they
have no authority, and the knowledge they acquire through experience is negated
by those in the health care power structure (Sherwin 228).
Women do 80% of the work in health care
institutions while men sit in the seats of power. Those in positions to set
policy are overwhelmingly male: administrators, physicians and legislators.
Most medical instructors, textbooks writers and hospitals directors are men.
Women who do function in health care administration are middle managers where
they do not have power over policy. Most research is controlled by men;
research standards were set by privileged men to meet their requirements. They
do not reflect ideas from female philosophers and scientists such as: adding
space in a project’s design to measure participant control, decrease separation
between subject and object, and resisting restrictive medicalized analysis
(Sherwin 228-229).
The jobs with the lowest income and status in
health care facilities are filled by working-class minorities: nurses’ aides,
kitchen and cleaning staff etc. They have no voice in the system. There is
certainly no research specifically to discover the needs of these minority
women. Black women make up only 1% of the nation’s physicians. They have been
kept out by hospitals refusing them internships or, if they did complete their
training hospitals would refuse them admitting privileges (Sherwin 230).
Problems with sexism and racism have been made
worse by oppressed groups being led to perceive that their interests were in
conflict with one another, thus dividing them and decreasing their power
potentialities. Sherwin sites Hine who showed that racial divisions have been
in nursing since 1890, white nurses tried to keep black women out of the
profession. Rather than joining with black nurses to counter racial prejudice,
they feared for their own status and helped to sustain oppression on fellow
women (Sherwin 230).
Not only are nurses oppressed by the
predominantly male medical system, but they are also downright abused by the
system. A survey conducted by The American Journal of Nursing revealed, far and
wide, nurses are performing (mostly not even under physician supervision)
exactly the same services for which doctors are billing patients, Medicare and
insurance companies for. Researchers have suspected this for many years. The
American Public Health Association says that physician payments have risen 17%
per year, compared to 9% for other hospital costs and 4% in other parts of the
economy. Congress is currently targeting physician payment reform (Griffith,
Thomas and Griffith 22).
Carol Lockhart RN, Ph.D., is a member of the
Physician Payment Review Commission, advised congress that we must address all
health care providers. She encourages nurse to document their role in Medicare
Part B, “We have little or no data showing how much of a particular service,
now billed by a physician, is done by a nurse – or how many services are
delivered by the nurse and billed under the physician’s name” (Griffith,
Thomas & Griffith 24). The authors suspect that policy makers will be
hesitant to include providers other than doctors because it would complicate
things dramatically. They assert that the alternative is certainly not OK. They
urge nurses not to allow policy makers to treat them as “invisible worker
bees” of the health care system (Griffith, Thomas & Griffith 27).
Some of the services mentioned in the study
were: giving intramuscular injections, starting intravenous infusions, giving
blood transfusions, inserting urethral catheters, training in activities of
daily living, interpreting an electrocardiogram, performing CPR, and suctioning
of the upper airways (Griffith, Thomas & Griffith 27).
Having spent 26 years working hospitals, I know
that doctors do not perform most of these procedures. (Just try to picture a
doctor teaching a patient how to wash himself with a cast on). When a doctor
does do one of these procedures it is in a teaching hospital, only so he can do
it once or twice for the experience). I was appalled to learn that doctors
billed for things like the above; I realize that I was so doing all of these
procedures and that I had never thought about who got the money for them. It
makes me wonder how much they charge for each of these and how wealthy I would
probably be if Medicare reimbursed ME for each thing I did for a patient.
Imagine also if listening, supportive touch, hugs, crying with families, and
teaching patients to stay healthy were valued for their roles in healing.
The hierarchical system encourages competition
rather than cooperation among social groups. It makes us all obedient to our
superiors and hostile to those below ourselves; thus, all groups become
complicit in maintaining the hierarchical structures. The health care system then
reinforces the oppressive attitudes of the rest of society (Sherwin 231).
Effects on Health Care
It’s not only unjust to distribute health care
with biases, but it also affects the quality of care. When most health care
decisions are made by wealthy, white, well-educated males, it is obvious that
they will make decisions that stem from their value systems which may be very
different from those of the patients. It is also likely that their views of
women, especially poor, uneducated minority women will be from a paternalistic
vantage point. These physicians make decisions where cultural communication
gaps exist – care suffers as a result (Sherwin 232).
Minorities and women frequently fill the health
care institutions with dead-end, demoralizing jobs; they lack the power and
influence to interject their cultural values into the system, as do the
patients who are also frequently minority and female (Sherwin 233).
Researchers are inclined do study things that
effect people in their world: heart disease, cancer and infertility. They are
less inclined to be concerned about poverty, malnutrition or sickle cell anemia
(effects mostly black in this country). What ends up happening is that those
who need the system the most find the system foreign to them. Most family’s
health needs are tended to by women who must try to operate in a male dominated
system that is costly and hospital-based. They have to attempt finding their
way around the system to obtain the right care, then they have to try to
translate what they are told by the professionals and attempt to communicate
their needs so that the professionals can understand it. Thus, the consumer and
the providers must function across cultural and language barriers in times of
illness, which are stressful enough (Sherwin 233).
Child care and transportation are not included
in health care resources, despite the fact that without them care will be
almost impossible to obtain for many. White doctors and nurses are
paternalistic in regard to minority patients; if they don’t follow
“orders” they are treated with hostility and anger due to their
noncompliance. It is frequently not considered that the patient may not have
had the money for the medicine or the patient missed a scheduled exam because
he feared loss of his job (Sherwin 233).
Chronic health problems that occur because of
oppression itself do not receive proper care. Priorities for child and woman
abuse are very low; the health care profession offers them drugs and lectures
(Sherwin 233).
In order to obtain ongoing support survivors of
sexual abuse, breast cancer patients and parents with chronically ill children
must form groups to help themselves. I have run across more than one physician
who became angry that I, as a nurse, informed their patients that there were
cancer support groups available to them. They, male physicians, did not believe
in “those groups.” How dare I offer something THEY did not approve of
for THEIR patients. I know that they do not intend to offer their patients the
intimate, ongoing, support and caring as the months go on. I know that they do
not understand or sympathize with their patients’ losses, yet they try to
“stand in the way” of their patients obtaining the help they need. (I
would always call The Cancer Society from home, anonymously, for
patients.)
Ideological Influences: Gender, Race, &
Class
The hierarchical health care system reflects
society’s sexist, racist, and classist attitudes; it supports them and keeps
them going as do all of our major institutions: the justice system,
universities, the business world, and the world of civil service. Those in
power are white males; they are supported by undervalued white professional
women; mere physical work is done by minority unskilled labor. This stratified
societal structure is of great moral concern (Sherwin 234).
Doctors have been justified in their dominance
because the end – health, is of such high value that their means have been, by
and large, acceptable. They “command” health care teams, “lead
campaigns” against dangerous life-styles, and “battle”
illnesses. They are allowed to give “orders” to nurses, physical
therapists, other health care professionals and their patients; because of
their expertise they rule all. White female nurses accept following doctors’
orders and thus serve as an example of how things should be done to minority
nurses. These nurses in turn have authority over non-skilled hospital workers
of color which perpetrates race oppression. So, the health care establishment
serves as a perfect role model for how people keep stereotypes and oppression
going (Sherwin 235).
It has been recognized for some time that
stress is a major factor in illness. The standards used to evaluate levels of
stress were developed from a male in authority perspective, the high-powered
business executive. The image of stress found in an American study of stress at
work found that it’s the lower level jobs were people have high work loads and
no control over their work situations. It is poor women who have no control
over their jobs and who must struggle to meet child care responsibilities who
face the most stress – they receive little support societally nor any relief.
Instead of being helped, they are judged when they develop poor coping
mechanisms like alcohol abuse, smoking or the use of drugs. Traditional lists
of stressful events included things like, being promoted at work, being drafted
or having one’s wife start working. These lists do not include, being raped,
having an abortion, loss of child care to a single working mother, working in a
situation where you are being sexually harassed or having received an
especially severe beating from your male partner (Sherwin 237).
Those in power of health care resources cannot
identify with these women and thus are not likely to be aware of their life
stresses – so they receive no real help. Doctors use their power to reinforce
negative attitudes about women; nineteenth century physicians had theories
about women’s uteruses being in competition with their brains with the hopes of
keeping them out of universities and “protecting” them from politics.
Many doctors today promote estrogens in post-menopausal women, despite cancer
risks, to help them avoid the undesirable effects of aging. Depending upon the
current fashion, doctors have “helped” to maintain women’s feminine
passive role with treatments like, genital surgery, psychosurgery,
psychotherapy, hormone replacement, or tranquilizers. It has not been considered
by the medical profession that perhaps changing the roles women have been
relegated to might alleviate some of their life stress thus relieving physical
complaints (Sherwin 237).
It is OK for women to develop illness as a
response to overwhelming life stress because it fits the image of being passive,
feminine and weak; it is NOT OK for women to question male authority by getting
angry and rebelling. So, women unconsciously took the socially acceptable mode
of stress relief – it is much less threatening.
The medical model has put its own knowledge at
the top of the hierarchy and made other types of knowledge and experience
subservient to that knowledge. This hierarchical structure is morally
unacceptable simply because it is hurting people. It responds differently to
different people’s needs; giving low quality and value to oppressed groups. Its
structure supports oppression. It rationalizes that this hierarchy is essential
to accomplish its ends; it tolerates unequal distribution of care, power and
prevents equality (Sherwin 238).
Research Recommendations
Research is social and political and affects
all of our lives. Unless there is more democratic representation among decision
makers in research, the science will be a science that supports interests of
the dominant groups in society. Scientists need to see their role in
perpetuating existing power structures and increase the connection with
subjects of their work; they must learn to see themselves as responsible to the
people at large and not just to corporations and institutions that support them.
It’s necessary to examine political and societal affects of research as well as
its acceptance by subjects when evaluating its ethics. The dominant class
controls research institutions and funding agencies, the values pursued reflect
their class, gender and racial backgrounds which are powerful. Research pursued
on women usually is chosen by privileged men (occasionally by women trained by
such men). When research serves women’s interests it is because it coincides
with those in control or because altruism was involved in a particular case. Or
it may end up serving privileged women: white, middle class, educated and
heterosexual (Sherwin 173).
Research decisions should be public and should
ensure accountability to the community affected. Oppressed groups should have a
say in the goal setting and guides for research. Poor women and women of color
will be harmed by fertility research on privileged women if the result is that
eggs “harvested” from valued women, matured and fertilized in lab and
transplanted into vulnerable women for gestation and delivery. These methods assure
“proper” genetics without the risks and discomforts of pregnancy and
birth for the “valued” women. (Sherwin 174-175).
Some feminists’ solutions to infertility are:
research and treatment of sexually transmitted diseases (STD’S) and other
causes of pelvic inflammatory disease which blocks tubes; a significant percent
of female infertility is preventable. Prevention of involuntary sterilization.
Direct attention to cause and cure of male infertility. Research into
eliminating environmental and social factors that contribute to it (i.e.
malnutrition). Pursuing techniques that will allow safe and reversible
sterilization in men and women, and providing better fertility control (Sherwin
135).
Bernadine Healy said, on Prime Time Live,
that the National Institutes of Health plans to use 625 million dollars through
the Women’s Health Initiative to finally study the effects of hormone replacement
and vitamin supplementation on postmenopausal women (Healy, Prime Time Live).
Solutions
Sherwin cites Warren who suggests we must
examine the fact that medical ethics requires an examination of the context of
engaging in ethics itself. The context and methods of ethical analysis are
themselves significant to the outcomes proposed. A “Sexist Ethics” is
one in which men use their perspective to frame moral questions and propose
solutions; its habit of cloaking itself in gender neutrality and selection of
topics that ensure women are kept on the defensive by making matters of concern
to them a constant subject of controversy. i.e. abortion, affirmative action
(Sherwin 91).
Warren suggests three feminist themes that
could direct the way medical ethics is discussed:
1. DIVERSITY
– Historically women’s theories and insights have been left out. After
including women in ethical theories, we then must figure out how ethics can be
inclusive to diversity. One way is to ask philosophical questions from varying
vantage points rather than the traditional doctor-based ethics. Feminists could
go beyond asking what a Hispanic woman from the barrio would need from ethics,
by actually tagging along with a social worker to the barrio and ask women in
the barrio what matters to them and what medical problems they face. Feminists
question having universal theories fit multiplicity and suggest making room in
the theory for particular others (Warren 40).
2. RELATIONSHIPS
– How do people in academia relate to each other in ethical discussions? The
motives and respect accorded to others in these discussions counts. When
ulterior motives are involved, we are playing the ethics game. Winning the
competitive argument does not lead to truth in solving ethical dilemmas. Feminists
might do well to seek variations in the ethics game to find the moral benefits.
Perhaps collective, anonymous authoring or using pseudonyms could be attempted.
This could bypass reputation and stimulate concentration on the ideas. We could
also appeal to the whole personality of the reader, not just his/her intellect.
If we could inspire others to voice their ambivalence it could lead to
self-knowledge and social harmony (Warren 41).
3. BASING
THEORY ON ORDINARY EXPERIENCE – Feminist theories should not originate from
ivory towers, but from real life experiences of real everyday people. Listening
to ourselves would enhance trusting our own judgments, despite the fact that
books may say something different. Doing so also challenges the experts.
“If knowledge is power, ‘life precedes theory’ is social revolution”
(Warren 42).
Warren suggests that in addition to questioning
the power structure between doctors and patients, we should also question it
between philosophers, students and ourselves (Warren 43).
Warren suggests ethicists might consider ways
to resolve power conflicts, perhaps a sort of preventative ethics; rather than
getting into who is in charge, the doctor or the patient, we could look to
prevent the very power struggle itself. Medicine’s very educational set up and
the organization of hospitals may be required. In addition, we might ask how
health professionals can help to diminish the power disparities and enhance
someone’s self worth. We might attempt to eliminate discrimination with a
radical strategy: educate people to value themselves without it necessitating
putting someone else down in the process. (Warren 38,39).
Warren also brings up an idea of feminists
discussing relationship ethics. How can we train health care professionals to
be sensitive, what should their work conditions be and how involved should they
get with their patients? With the abortion debate we might add the relationship
between the mother and child, not just whose rights are prominent (Warren 39).
Warren suggests as a solution to the power struggles that we view the doctor as
an educator rather than an authority figure. (Nurses traditionally have been
delegated to do patient teaching simply due to their gender) (Warren 39).
“Teaching skills are hard won–requiring
practice, experimentation, and sensitivity to audience. The medical model
down-plays the difficulties of teaching well, tends to attribute failures of
communication to patients and lets physicians who are poor teachers off the
hook” (Warren 40).
We should not keep trying to separate theory
from nurturing. Nurturing needs to be valued monetarily and it should be
incorporated into technical and theoretical education (Warren 36).
Sherwin suggests that the institution of
medicine be transformed away from emergency treatments and concentrate on
empowering people to help themselves stay healthy. She even suggests a
nurse-patient model because nurses see their role as empowering and informing –
not controlling. Nurses however, like mothers are limited by the fact that they
themselves are oppressed (Sherwin 28, (Holmes & Purdy)).
The principle task is for feminists to develop
a conceptual model to restrict the power involved in healing, by giving out
specialized knowledge that will give people maximum control over their own
health. To clarify how excessive dependence can be reduced, how caring can be
offered without paternalism and how health care can become worthy of trust. The
goal should be to spread information widely and foster self-help. Medical expertise
should be seen as a social resource under the control of patients and those who
care for them (Sherwin 28, (Holmes & Purdy)).
Instead of crisis management the main thrust
should be – health empowerment. When counseling a family on saving a critically
ill infant, one should keep in mind that, the mother will be the one doing the
care, seldom with adequate support; not only should this lack of support should
be included in the decision making process, but we should have supports
available to make caring for the disabled child reasonable for the woman to do
(Sherwin 94-95).
Patients don’t HAVE to all have the same
condition to be able to help one another. Why couldn’t we have groups of
patients who were in need of information come together; why couldn’t a patient
with a terminal heart condition talk to a person with terminal cancer – they
may indeed be able to give each other insight into how they can wrangle the
system to get what they want in their medical care. How about a general
information place for health care? A place that is non hierarchical, has no
loyalties to doctors or hospitals, is just interested in helping patients to
make their own informed decisions? That’s what I am envisioning myself doing.
Why not be government subsidized? Could I be free with this type subsidy?
Feminists will press for change in status of
women and children from breeder and possession, to valuing them. They will
challenge the idea that having your wife produce a child with a man’s own genes
is sufficient cause for their wives to undergo the physical and emotional
assault IVF and genetic technology involve (Sherwin 135).
Conclusions
Doctors, because of their “power of
legitimacy” in health care, could use their power to destroy patriarchal
attitudes about women; they could dispel myths about racism, homophobia, and
classism to begin to destroy oppression. Because the traditional medical model
perpetuates oppression, we must develop different models in order to attain
ethical acceptability (Sherwin 237-238).
A feminist ethics would expand health and the
expertise involved with it. It would not dwell on the physiological, but would
consider the social aspects of our lives that have profound effects on our
health. It would bring the morality of oppression and its solutions into health
care discourse. It would make clear that those in power are morally mandated to
seek solutions to oppression. It would necessitate drastic changes in present
health care policies. When oppression is considered in medical ethics, the authoritarian
model in which the physician is the expert on all matters of health will
shatter. A feminist ethics would recognize that experiential knowledge is vital
to understanding how oppression effects health and how it can be reduced.
Feminist ethics would require political along with moral understanding of
health and health care (Sherwin 238-239).
A feminist model would produce social equality
by empowering those who have been traditionally oppressed. It would limit the
authoritarian scope of those who have gotten so used to being in control. The
equalization of structures would foster higher standards of health and health
care to those oppressed. It would hear those unheard voices and respond to
their needs (Sherwin 239).
The medical model focuses on “cure”
and that “curing” belongs to the providers. A feminist approach would
ensure empowerment to the consumers of health care by giving them the
information and the means to make life changes that would facilitate their
health. The medical model is closed to alternative healing modes that increases
the power of patients and diminishes medicine’s power over them. “A
feminist model would be user-controlled and responsive to patient
concerns” (Sherwin 239).
Such changes in our health care structures
would direct our priorities to the necessities of healthy living and helping
patients to obtain them, rather than waiting to address the damaging
consequences. The democratization of the medical model may also lead to
reduction in health care costs and be more effective at the same time. Most patients
are much less interested (compared to providers) in crisis intervention and the
use of high technology as solutions to their health care needs; most patients
would prefer prevention (Sherwin 240).
Feminist ideals would seek to alleviate the
maintenance of oppression in the health care system. It would attempt to
provide fair distribution of health care resources and try to undermine the
assumptions on which the rationale for oppression exists. Feminist alternatives
are required for both ethics and health (Sherwin 240).
We must start with a democratization bioethics
itself; medical ethics must recognize the value of incorporating diversity in
its discourse and analysis. Bioethics is similar to other disciplines in that
it is judged by the opinions of its participants. Let the moral analysis itself
be moral by the inclusion of diverse voices and values in the attempt to
develop solutions (Sherwin 240).
It seems to me that, since women have bought
into men’s moral theories it’s no wonder, they have been so guilt ridden when
they somehow sense things are not right with the system, but feel, “who
are they” to question the very core of things. Perhaps that’s why it has
taken so long for women to evolve out of the guilt and accompanying loss of
self esteem to even think about developing their own ethical theories that FIT
in most people’s lives – not just those of women. Feminine ethics is involved
in caring, but that was a way to deal with our oppressors – so we must use
caution. Feminist ethicists ask when is caring ok and when is it best
withheld? Sherwin says we must consider
justice AND caring (Sherwin 240).
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